Re: MD and Mito...specific diagnosis of an md and a mito myopathy

[Guest guest]

I mean being diagnosed with a mito myopathy (complex I) and beckers or duchenne md on top of that

thx

myst Darlene Graham wrote:

Mito is in the md family. The MDA has helped us with a lot including awheelchair, muscle biopsy and this will be J.D.'s 5th year a camp that heloves. Love, DarlenePlease contact mito-owner with any problems or questions. __________________________________________________

[Guest guest]

Mysty,

Complex I can be confusing and can mimic beckers and duchenes but hey, anything is possible. J.D. was misdiagnosised with cerebral palsy and like duhhhhhhhhhh cp doesn't progress and the therapy for cp actually made his mito worse.

Beckers and duchenes prognosis is clearer than mito but would think it would compound the mito issues. Some diagnosises are given w/o the testing.

Darlene

[Guest guest]

Thanks for the input.

We will know what is what over the next two weeks. The diagnosis is being based on the muscle biopsy that was done a couple months ago. I will fill you in on what we learn. So far we only have the initial impressions of the samples. We will see what stands up when all the testing is complete.

Thx again MystDarlene Graham wrote:

Mysty,

Complex I can be confusing and can mimic beckers and duchenes but hey, anything is possible. J.D. was misdiagnosised with cerebral palsy and like duhhhhhhhhhh cp doesn't progress and the therapy for cp actually made his mito worse.

Beckers and duchenes prognosis is clearer than mito but would think it would compound the mito issues. Some diagnosises are given w/o the testing.

DarlenePlease contact mito-owner with any problems or questions.

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