RE: Re: list of doctors, DBB, sole folds

September 24, 2005

Hi Naomi and all who help me to find a list of doctors! Thank you!

I had information that there are some trained and approved doctors from

Finland and Russia but there are not Finland and Russia in the list. May be

does another list exist?

I am living in Finland now. I have 2 babies-twins. They are 1 year 5 months

old.

Son Aleksi has bilateral clubfoot. When he was 10 months he had Achilles

tendon operated first time. Then he had 2nd one and when he was 1 year old

he got DBB. He was OK with them during day time. But at nights at best he

could sleep for 3 hours then he began to scream and he could not stop until

I took shoes off. So he had DBB 12-17 hours a day instead 23. After 1 month

our doctor check him and was satisfied with Aleksi's feet and said that

Aleksi could have DBB only when he slept. 3 months we managed to have shoes

on when Aleksi slept. We were carrying him at nights. But now already during

1 month he cries every 15 minutes - half an hour and after about 3 hours we

have to take shoes off. I do not know reason may be because shoes became

small, may be Aleksi slept few nights without shoes and he understood that

it was much better and now he does not want....But I can see his feet are

turning inside again.

We have consultation with another doctor. He also uses Ponseti method. He

offers to use special thing except DBB. Unfortunately I do not know how it

is in English. It is schiene in German. It is special plastic form that you

put on whole baby's legs when he sleeps. It also has 70 degrees. They say

that Ponseti method allow to use similar things except DBB if it is not

possible to use ones. They say that it is better that DBB because there is

no bar and it is more comfortable for baby and DBB influence on nee joints

bad way. Does anybody have any information about this? We choose Ponseti

method. But I can not believe that for more that 50 years method was not

develop.

Also Alksi has fold on his soles. They offer to cut them. Is it also Ponseti

method?

I am desperate. How to help my baby and manage myself. I have not slept for

2 years. I will appreciate any information VERY much.

Thanks in advance.

Olga, Mama of and Aleksi, 20.04.04

Aleksi has bcf, can wear DBB now only 3 hours a day

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