Curvy sitting and foot pointing straight

[Guest guest]

Hello, everyone! I have two separate questions. (8 months old next week)

has a right club foot and is currently in the FAB for 14-16 hours a day. I've

recently noticed more and more that when he sits up, his body leans to the right

and his head leans to the left. Looks almost like an " S " from the back. He

DOES have torticollis, but the way he leans his body that way just looks weird

to me. Has anyone seen anything similar. He had spinal x-rays when he was born

and no one mentioned anything about scoliosis, but who knows?

Also, he has unilateral right CF and when he's out of the shoes, he usually

keeps his left leg bent and the foot dorsiflexed normally, but the right leg is

usually kept straight and the toes pointing down. Is this normal? I believe

his foot is fully corrected. He's had no probelms with the shoes. He also has

just recently started standing for a few seconds at a time with help, so I don't

know if that will help keep his foot more dorsiflexed.

If anyone has anything to say about any of this, I'd love to hear!

Thanks in advance to everyone!!!!!!!!!!!!!!

mommy of (12/15/04 RT CF, FAB 14/16 hrs a day)

__________________________________________________

[Guest guest]

Our 16 month old, Elijah has always sat with one leg out and one leg

under him. He's RCF and keeps the right foot out and the left

under him. My husband will pull the left leg out and Elijah will

put it right back under, LOL!

Ive not noticed that he sits curvy tho'.

Lori

Mom to , Nova, Ethan and Elijah 3/26/04 RCF Atypical DBB

nights only.

> Hello, everyone! I have two separate questions. (8 months

old next week) has a right club foot and is currently in the FAB for

14-16 hours a day. I've recently noticed more and more that when he

sits up, his body leans to the right and his head leans to the

left. Looks almost like an " S " from the back. He DOES have

torticollis, but the way he leans his body that way just looks weird

to me. Has anyone seen anything similar. He had spinal x-rays when

he was born and no one mentioned anything about scoliosis, but who

knows?

>

> Also, he has unilateral right CF and when he's out of the shoes,

he usually keeps his left leg bent and the foot dorsiflexed

normally, but the right leg is usually kept straight and the toes

pointing down. Is this normal? I believe his foot is fully

corrected. He's had no probelms with the shoes. He also has just

recently started standing for a few seconds at a time with help, so

I don't know if that will help keep his foot more dorsiflexed.

>

> If anyone has anything to say about any of this, I'd love to hear!

>

> Thanks in advance to everyone!!!!!!!!!!!!!!

>

>

> mommy of (12/15/04 RT CF, FAB 14/16 hrs a day)

>

>

>

> __________________________________________________

>

[Guest guest]

I think we can all relate...I feel like my pediatrician thinks I'm

nutty! He's seen me mother 2 other children very relaxed and laid

back...never any issues, never any questions. Now every time I take

Ava in I'm like " What's this? What's this? Is this a big deal? What

about this? DOes this mean something? " Just yesterday she had her 1

year checkup (24 lb. 2 oz, 32 1/4 " My tallest one yet!) and I made

him check her head (it felt lumpy) her eye (she has one droopy

eyelid too, which my son also has and various others in my family).

Then I felt stupid and didn't ask about her butt (her crack is

crooked :-) no, really) I think he thinks I've lost my mind. But I

really feel like I'm so over sensitive with her. We have the CF,

possible ABS, and I'm always waiting for the other shoe to drop,

KWIM? I try not to let that shadow her...

> > Hello, everyone! I have two separate questions. (8

months

> old next week) has a right club foot and is currently in the FAB

for

> 14-16 hours a day. I've recently noticed more and more that

when he

> sits up, his body leans to the right and his head leans to the

> left. Looks almost like an " S " from the back. He DOES have

> torticollis, but the way he leans his body that way just looks

weird

> to me. Has anyone seen anything similar. He had spinal x-rays

when

> he was born and no one mentioned anything about scoliosis, but

who

> knows?

> >

> > Also, he has unilateral right CF and when he's out of the

shoes,

> he usually keeps his left leg bent and the foot dorsiflexed

> normally, but the right leg is usually kept straight and the

toes

> pointing down. Is this normal? I believe his foot is fully

> corrected. He's had no probelms with the shoes. He also has

just

> recently started standing for a few seconds at a time with help,

so

> I don't know if that will help keep his foot more dorsiflexed.

> >

> > If anyone has anything to say about any of this, I'd love to

hear!

> >

> > Thanks in advance to everyone!!!!!!!!!!!!!!

> >

> >

> > mommy of (12/15/04 RT CF, FAB 14/16 hrs a day)

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

,

Its funny that you mention the butt crack. When Elijah was really

young and being treated by the Air Force Dr, she asked me on several

occasions to look at his butt crack and thought it looked funny, as

tho' it werent fully developed and had some sort of (for lack of a

better word) 'pucker' at the top. I didnt think it looked odd, it

looked like the other babies Id had. I dont remember what she

called the condition.

lol, she also asked if any of our extended family members had that

and before I could answer her with, " I have no idea. " my mind raced

forward to questioning individual family members as to the condition

of their butt creases and I got the giggles.

She kept an eye on it and it turned out to be nothing.

Lori

> > > Hello, everyone! I have two separate questions. (8

> months

> > old next week) has a right club foot and is currently in the

FAB

> for

> > 14-16 hours a day. I've recently noticed more and more that

> when he

> > sits up, his body leans to the right and his head leans to the

> > left. Looks almost like an " S " from the back. He DOES have

> > torticollis, but the way he leans his body that way just looks

> weird

> > to me. Has anyone seen anything similar. He had spinal x-

rays

> when

> > he was born and no one mentioned anything about scoliosis, but

> who

> > knows?

> > >

> > > Also, he has unilateral right CF and when he's out of the

> shoes,

> > he usually keeps his left leg bent and the foot dorsiflexed

> > normally, but the right leg is usually kept straight and the

> toes

> > pointing down. Is this normal? I believe his foot is fully

> > corrected. He's had no probelms with the shoes. He also has

> just

> > recently started standing for a few seconds at a time with

help,

> so

> > I don't know if that will help keep his foot more dorsiflexed.

> > >

> > > If anyone has anything to say about any of this, I'd love to

> hear!

> > >

> > > Thanks in advance to everyone!!!!!!!!!!!!!!

> > >

> > >

> > > mommy of (12/15/04 RT CF, FAB 14/16 hrs a day)

> > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

Yes, thats what she called it and I do remember, now, her mentioning

spina bifida. It was such a minor thing during the worst part of

our casting and tenotomies that all I recall about it is her

ordering an ultrasound but as crazy as it sounds, I cant actually

remember if we had one or not. During that time, Drew was on a 6

month deployment to the Gulf and I was dealing with everything

alone so its a wonder that I even remembered my name then.

Lori

>

> > ,

> >

> > Its funny that you mention the butt crack. When Elijah was

really

> > young and being treated by the Air Force Dr, she asked me on

several

> > occasions to look at his butt crack and thought it looked funny,

as

> > tho' it werent fully developed and had some sort of (for lack of

a

> > better word) 'pucker' at the top. I didnt think it looked odd,

it

> > looked like the other babies Id had. I dont remember what she

> > called the condition.

>

> Did she perhaps call it a sacral dimple? If so, it can be an

indicator of

> spina bifida occulta. Usually, there are no problems associated

with it, but

> on occasion there can be.

>

> > lol, she also asked if any of our extended family members had

that

> > and before I could answer her with, " I have no idea. " my mind

raced

> > forward to questioning individual family members as to the

condition

> > of their butt creases and I got the giggles.

> >

> > She kept an eye on it and it turned out to be nothing.

>

> I'm glad it turned out to be nothing! My oldest had a sacral

dimple, and it

> also turned out to be nothing.

>

> Joy

>

> http://www.geocities.com/joybelle15/rosesclubfootpage.html

>

> __________________________________________________

>

[Guest guest]

I thought Spina Bifida & club foot are very related.

>

> > OK this is veering off of feet but Kelsey has that

> > little pucker at the top of her butt as well. As an

> > infant, they did an ultrasound to rule out spina

> > bifida because it also it also has a skin tag inside

> > it which I guess can be an indicator. It turned out

> > to be nothing but that is funny that another little

> > one on here has it as well.

>

> When Rose was born, she had a sacral dimple (which can indicate

spina bifida

> occulta-meaning closed spina bifida). The u/s she had ruled that

out. Each

> doctor we saw, though, would check her feet and check her diaper

area. I have

> to wonder if it's pretty common in clubfoot children.

>

> Joy

>

> http://www.geocities.com/joybelle15/rosesclubfootpage.html

>

>

>

> ____________________________________________________

> Start your day with Yahoo! - make it your home page

> http://www.yahoo.com/r/hs

[Guest guest]

> I think clubfoot can be very related to spina bifida, but I don't

think spina

> bifida is very related to clubfoot if that makes much sense!

Joy--That does make sense...spina bifida can cause CF (or be a

contributing factor or however you want to say it), but CF can't cause

s/b, is I guess what you're saying.

Do they know how severe your new baby's spina bifida is? Or do they

have to wait until he/she's born? (If you don't mind me asking) It

does seem strange that you would have these similar things happen 2x

and they say it's not related. Every doc that looked at Ava's feet

immediately checked her back in our case, too. I guess that's why I

figured they were linked.