Re: K

[Guest guest]

It sounds like you have MS not Mito. Have you tried any of the MS support

groups online yet? I used to think I had MS and was a part of a support

group online a couple of years ago and they are real nice people. It might

help you to talk with them as they will better understand some of the health

problems you are dealing with. I am sorry you seem to be having a hard time

right now. I hope things will start to look up for you.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

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> hi i don't know how to deal with this my partner and i exchanged

> rings on April 20/03 and i am scared to call him my husband as i

> feel i will jinx my relationship and he is my b/f along with being

> my partner and husband. as i was married 2 other times and before

> the weddings things went good but after i almost died at their hands

> it seemed like when they got the word they were my husband and i was

> their wife then it gave them permission to do it as a wife in their

> eyes were a possession to deal with and 'a man can beat his

> belongings with a rod the size of his thumb' and they did i know D.

> wouldn't do it as he is too kind and wears his heart on his sleeve,

> but i do have that fear and with my ex [told me if i ever got

> married again he would kill both of us and he is scizo and really

> crimally dangerous] and his ex [wants him in jail for no reason as

> she has tired many things from saying he sexually assualted her when

> he wasn't even in town to signing their 4 month old baby away when

> he was in jail for her lies and said he abandonded them which he is

> fighting for her in courts]. but i know i call him my partner or b/f

> in groups and have people against me as i know it isnt' in God's

> eyes to live together without marriage between us but we had the

> pastor and 4 other people witnessing it but haven't had a party, to

> celebrate it or haven't denied it we just started to live together

> as man & wife afterward, and if there wasn't a marriage then we

> would have had to leave the church but i don't feel alot need to

> know till we are done the court stuff. and also i am scared to tell

> alot and he doesn't want me saying his name on the net so i call him

> my partner or b/f or D. but i am [not from this group] getting

> people calling me a lier and don't know how to handle it i left the

> groups for quite awhile and wish i never came back to some. am glad

> i have gotten some friends back but unfortunately i am human and

> have fears and don't like being threatened by ANYONE and may leave

> the groups again if the threats don't stop and will report to the

> authorities. if anyone has any help or suggestions that are

> constructive i would appreciate them but i HAVE ENOUGH NEGATIVE and

> don't want anyone elses as it doesn't do my MS any good and the

> specialists say i DO HAVE primary progressive MS but due to my heart

> muscles and other interiors being weakened that is were the meds

> seem to attack instead of helping and have developed more leasions

> on the brain and spinal cord in the past 6 months and it is due to

> the stress and other physical, emotional and mental reasons. that is

> why i have changed all my eating habbits but it is so hard as i have

> given up salt, processed foods, dairy, pork, and addatives but also

> don't know where to find good recepies for a limited diet choice.

> anwya talk tomorrow. k.

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> Please contact mito-owner with any problems or questions.

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