Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 I have Mito and I have Lupus... both confirmed. My ANA is consistently 1:1280 My kids all have mito and positive ANA's as well as anti histone positive...two have the classic butterfly rash... lots of joint pain... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 I am curious about the butterfly rash look. Is that the same rash we have talked about before on the group that looks like pressure bruising? The reason I ask is because Tirzah (my 8 year old) has had this several times on her face, chest, and other areas. She has always concerned me but her labs looked fine a year ago when visiting Dr. Whiteman. She is the child that had bone marrow suppression during/following a bad virus at 11 months of age. We know she isn't healthy because she always has rings under her eyes, is pale looking, has thin, oily hair all the time even just after washing it, in too skinny, and has different Mito symptoms such as migraines, dizziness, eye problems, etc. See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Lupus and Mito > > > I have Mito and I have Lupus... > both confirmed. > My ANA is consistently 1:1280 > My kids all have mito and positive ANA's as well as anti histone > positive...two have the classic butterfly rash... > lots of joint pain... > > > > > > > > > > > > > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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