Re: Large calf muscle/may be disease progression?

[Guest guest]

Tamara,

I know that the large calf muscles go hand in hand with Duchenne's Muscular

Dystrophies and some other muscular dystrophies. I had not heard about it in

mito. If you go to the MDA web page and look up calf muscles, I think you'd be

likely to find out about it b/c I know it's a pretty prominent feature in kdis

with Duchenne's Muscular Dystrophy. I do not know what it means for kids with

mito, except that it tends to happen when the other muscles are getting weak and

the calf muscles are trying to compensate. Wish I knew that there were some

answers to help.

HTH,

Anne R

[Guest guest]

Hi Tamara,

My son, J.D., has mito and has large calf muscles. It is from the

muscle spasms. Since he " looks " muscular, people think he is strong;

however, is has very little energy. When he first look pt years ago, before

his diagnosis, they just thought he had to build up energy but the pt

actually made the mito worse. He gets ultra sound therapy on his legs and

according to Dr. Whiteman, this helps mito kids. If a dr writes the order,

the therapist has to follow it. We at first ran into therapist that didn't

understand mito but had to follow dr's prescription.

Most mito kids had low muscle tone but large calf muscles can be mito

related.

Hope this helps.

Darlene