Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 hi my name is lisa and i have a 5 year old with complex IV like you we spend a lot of time in hospitals and we see dr whiteman too anyway on one of your last post you spoke of your challenging visit at a hospital i don't know where you live, however, we go to children's minneapolis and i have always been pleased our stays average 11 days and i am ready to leave before the dr's want to discharge us my daughter is a " hard poke " so anesthesia has to come. for the most part i have had very little problems with the er staff, drs, and nurses. we work with partner's in peds dr kuperman-- who is awesome, dr ferenci ped gi, dr breningstahl ped neuro, dr rich surgeon her iv is usually started in the er and then the partner's in peds dr rounding in the hospital admits us and he or she is the one who consults with family, kuperman and other dr to decide on discharge i could go on and on post or email me if i can help lisa ehele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 St. 's Hospital ER has always been fine and my girls are hard sticks as well so we use the flight crew (PIC-U)so that too has been fine. We have only had this one time where we have had trouble but have heard of others leaving too soon and needing to come back and wonder how much of a problem it is there. The nurses told me they had plenty of open rooms so why he was in such a rush we have no idea. Overall, I still would rather go to this hospital because our major docs are at Mayo and with Asenath's rare issues, we need to be somewhere that knows about them and knows how to treat them. Unfortunately this particular doc just didn't take it seriously, but I think he will rethink things next time around! Our GI will make sure things go fine. Thanks for your note though. See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) to darla klein > > > hi my name is lisa and i have a 5 year old with complex IV like you > we spend a lot of time in hospitals and we see dr whiteman too > anyway on one of your last post you spoke of your challenging visit > at a hospital i don't know where you live, however, we go to > children's minneapolis and i have always been pleased our stays > average 11 days and i am ready to leave before the dr's want to > discharge us my daughter is a " hard poke " so anesthesia has to > come. for the most part i have had very little problems with the er > staff, drs, and nurses. we work with partner's in peds dr kuperman-- > who is awesome, dr ferenci ped gi, dr breningstahl ped neuro, dr rich > surgeon her iv is usually started in the er and then the partner's > in peds dr rounding in the hospital admits us and he or she is the > one who consults with family, kuperman and other dr to decide on > discharge i could go on and on post or email me if i can help > lisa ehele > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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