Re: Ann/ J/all- Repeating phrases

[Guest guest]

Asenath has the same problem. We have especially noticed the issue to

become worse after her cognitive strokes. She will say something several

times and until we repeat " Exactly " what she wants to hear word for word,

she will keep repeating it and get very frustrated. The last cog. hit also

caused a lot of anger and emotional outbursts so this issue has been much

worse because she gets so upset if we don't quickly respond to her. Our

therapists do repeat what she says often and it seems to help so we have

learned to really listen when she speaks and then repeat back what she says

or say the answer to her question with several of the same words she uses in

her question so she doesn't get riled up. For Asenath I think it is

partially an issue with processing and recall/memory problem. She also

obsesses over certain things when not doing as well. For a while everything

was about necklaces for instance and if you didn't let her see or wear a

certain necklace she would lose it. This can really be a frustrating issue

for sure. This is actually an issue I was planning on bringing up with the

group as she has gotten to the point where she gets so frustrated with

things and needs specific responses or she really loses it. For instance,

she will have to kiss several times and hug several times when I or others

leave and we have to allow her how many times she wants or look out. And

lately we have even saw temper tantrums (which has NOT been her pattern most

of her life other than surrounding stroke episodes) and she was even rocking

and banging her head the other day when she couldn't have her sister near

her.

Autistic behaviors also a possibility I know, but could be many

things...

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Repeating phrases

Ann,

> It kind of gets on my nerves to hear him say the same thing over and

> over again. I say, " Ok honey. Let's talkabout something else. "

> Sometimes it works, sometimes it doesn't. Any ideas?

I don't know what all it means but my little (age 3) is doing

this same thing. What we have found works is to repeat the phrase back

to him, and sometimes that helps the " skipping record " . The other

thing is we have found some of Will's phrases are supposed to have a

specific response or Will continues to repeat it until you give him the

right line back. Example of this is he'll say " phew " over and over

again until you tell him " that was a close one " and then he says the

whole phrase back to you and can move on. This is definitely getting

worse around here and our Speech therapist isn't too sure what to make

of it either.

Sorry I don't have any info on the why side of this, but we are dealing

with it too

Hope that helps some,

J

Colo