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Re: Dr Found

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My 3 year old son has been tentatively diagnosed as having complex

III and IV deficiency. He has no symptoms at this time

(any " symptoms " he has are attributable to a stroke he suffered at

birth) Do you ever feel like you are just waiting for the other shoe

to drop and suddenly your kiddo is going to get sick? I don't feel

this way all the time, but every once in awhile I do. It is just an

awefull feeling.

Beth

PS, thanks for the hope :) If you would like to see my son's

webpage, type LeFevre into your search engine

and " alexander's page " will come up

> Just FYI; Your son's issues are the same ones my 12 year old son

had/has. He no longer has seizures, and his ataxia has resolved. He

is my most affected child out of the 4. They all have atypical

partial complex 1 deficiency.

> * (He is an honor roll student who plays 3 team sports- so never

give up hope)

> -----

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Mine had a stroke after his last DPT, so that is maybe why they are similar???

I will definitely check out his page, but I have to get all of my crew down.

Cindy

I am getting better about the "dropping shoes" feeling, but with 4, my life goes up & down and sideways quite frequently.

I can usually see it coming and try like heck to head it off- but it is definitely worse to be blindsighted by something unforeseen.

My oldest is 16, my youngest 5- this is my life- I usually try and choose to be happy when I can...

Re: Dr Found

My 3 year old son has been tentatively diagnosed as having complex III and IV deficiency. He has no symptoms at this time (any "symptoms" he has are attributable to a stroke he suffered at birth) Do you ever feel like you are just waiting for the other shoe to drop and suddenly your kiddo is going to get sick? I don't feel this way all the time, but every once in awhile I do. It is just an awefull feeling.Beth PS, thanks for the hope :) If you would like to see my son's webpage, type LeFevre into your search engine and "alexander's page" will come up> Just FYI; Your son's issues are the same ones my 12 year old son had/has. He no longer has seizures, and his ataxia has resolved. He is my most affected child out of the 4. They all have atypical partial complex 1 deficiency.> * (He is an honor roll student who plays 3 team sports- so never give up hope)> -----

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