Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Hey gang, I'm slowly climbing out of hiding and if you notice I said slowly.. I've started having this extreme shortness of breath that some of you are having, I can't walk from one room to another without gasping for breath, plus I've started having this pounding heart beat in my throat and neck along with the shortness of breath..I know we tend to blame everything on sarcoidosis, the doctors don't see it that way.. so I find myself lost again.hmmm.. On Monday night I had the most horrific throbbing pain in my right neck, radiating in to my shoulder and reaching up to my lower jaw.. I was nauseated and came close to upchucking several times but did not.. The only symptom I didn't have for a heart attack was I wasn't clammy or sweating profusely.. Soo, I opted to just wait it out.. When my son got up for school, I told him I was sick and was gonna go to the ER, he offered to take me,but its onlly like 2 blocks away, and I drove myself.. Still having the pain in my neck.. they did a doppler, a ct scan of my head and ekg and lab work.. everything was normal except my kidney function tests, seems my kidneys are trying to shut down again.. They did nothing.. my throbbing finally went away while resting there.. and so did my shortness of breath as long as I was lying still... I'm soooo sick of being sick.. I'm off to see a Cardiologist as we speak, what do I need to ask her to do? Holtier Monitor? They really don't take any of this very seriously.. Thanks all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 , I am sorry to hear this, I know so many do not take us seriously, my pulomonologist is the only one that takes me serious. At least I can say I have one that cares about me. You are in my prayers. I would think a Holtier Monitor would be a good thing? Marl a Marla Bramer Independent Beauty Consultant Kay cosmetics mbramer@... www.marykay.com From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of topdat@... Sent: Friday, November 16, 2007 10:00 AM To: Neurosarcoidosis Subject: ER Visit Hey gang, I'm slowly climbing out of hiding and if you notice I said slowly.. I've started having this extreme shortness of breath that some of you are having, I can't walk from one room to another without gasping for breath, plus I've started having this pounding heart beat in my throat and neck along with the shortness of breath..I know we tend to blame everything on sarcoidosis, the doctors don't see it that way.. so I find myself lost again.hmmm.. On Monday night I had the most horrific throbbing pain in my right neck, radiating in to my shoulder and reaching up to my lower jaw.. I was nauseated and came close to upchucking several times but did not.. The only symptom I didn't have for a heart attack was I wasn't clammy or sweating profusely.. Soo, I opted to just wait it out.. When my son got up for school, I told him I was sick and was gonna go to the ER, he offered to take me,but its onlly like 2 blocks away, and I drove myself.. Still having the pain in my neck.. they did a doppler, a ct scan of my head and ekg and lab work.. everything was normal except my kidney function tests, seems my kidneys are trying to shut down again.. They did nothing.. my throbbing finally went away while resting there.. and so did my shortness of breath as long as I was lying still... I'm soooo sick of being sick.. I'm off to see a Cardiologist as we speak, what do I need to ask her to do? Holtier Monitor? They really don't take any of this very seriously.. Thanks all, Quote Link to comment Share on other sites More sharing options...
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