Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi Darla, I read about Mayo not sending the muscle biopsy, that is so awful!! What did they ever figure out? Did they apologize? When Aspyn was first diagnosed we went to Mayo, Dr. Whiteman ordered a bunch of blood work, when we took her to the lab they stuck her at least 12 times, they poked everywhere they thought they could get blood, it was so awful, they tried in her head, neck, groin, and feet...when they finally got what they needed, we left, the next day we had to go through it all again because the lab ran the same test twice and wasted her blood. I just cried watching....it wasn't fair that she had to go through all of that, she was bruised from head to toe, and of course the lactic acid was not accurate because of all the trauma. I just wanted to tell you I am sorry that Poorah had to go through all of that for nothing, if those people only knew the trauma our children have to go through in the first place. How are the girls? I read some of the posts, but lately I have had a really hard time reading them, so some of them I have just been deleting. I hope all is well and that the girls are doing good. You are all always in my thoughts and prayers!! Thinking of you all always, Wayne, , Gentry and ~Angel Aspyn~www.aspynblock.com Quote Link to comment Share on other sites More sharing options...
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