Re: seizures help/ Dawn & kim

[Guest guest]

Dawn, Chelsea has been on Keppra for 2+ yrs as well. It has been a good drug for her with little side effects. She is on the highest dose for her weight, and had to recently start Lamictal as well, but her seizures are under good control.

I wasn't aware that any particular seizure type is associated with mito, I assumed any kind of seizures could happen. Since Chelsea has Rett's, this is probably moot, but she has had all kinds of seizures, including absence. She has a strong tendency toward convulsive seizures, but progressed to that point.

I hope Keppra works for Molly. What do her seizures look like?

They are on a total of 1500mg per day. (They weigh 30 pounds.)

Kim, this is the dose Chelsea is on, she weighs 60lbs, so 2wice as much as your kiddos. I was told this was the max dose for her weight and going higher was probably not going to do any better, so she was put on Lamictal. What have you been told is the max dose!

Thanks!

Sorry for such a late response, got behind on my mail, Like I do every Christmas!

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)