Re: Re. am I over reacting? a little long....sorry! :)

[Guest guest]

I also agree that you are not overreacting. I guess some of our family would say the same things to us too over the past two yrs. Halloween is the last big outing that our daughter, Jaleigh gets to go out for. She is home-schooled (preschool) & we do not get her back out until March.

Call me over-protective...but I know for a fact that I am doing the right thing by not letting her out and around the stores, daycares, etc. Her first yr & 1/2 of life she was hospitalizd 4 times...since then she has not been sick but only once and that was an ear infection last yr. I do not let her around any other little kids, unless they have had the flu shot, during the flu season (end of October-March).

I am sorry if some of you think that this is anal...but she has been well...knock on wood for quite some time now. I do get her out to go for rides everyday to the surrounding towns & such...she just does not go into the store, etc. To each his own..but that is what is really working for us...despite hurt feelings of others...you have to do what you have to do...is my theory. And the way I see it...it has kept her well & alive this long so it must be working! Just venting...thanks for listening.

Debbie Vanaman

Mommy to Jaleigh, Complex One-- Re: am i over reacting?

I totally agree with you, Barb.

We have the same rule for Maddie's therapists, teachers and all family members who come into the house. If they have been exposed to something they are to call us and let us decide whether or not Maddie would be at risk. We have the same problem with family members saying "well they need to be exposed..." and I agree that MOST kids do, but not any of mine. Simple viruses and colds hit Maddie 10 times harder and last twice as long as the other kids. What made some of the family realize how serious it is for Maddie was to see her mouth blue from coughing and absolutely no energy (totally lethargic) and the other kids somewhat active with the same illness. We really shut down in the late fall through the spring. Sometimes it seems hard on the other kids, but this is the life we have to live in order to keep Maddie well. We try to make up for it in other ways, but I think my kids are great and really have an understanding (as well as a 3 1/2 yr old and 7 1/2 yr old can) as to what is going on with Maddie and why we have to do what we do. We are the only ones who can protect our children, and sometimes hurt feelings (from family) are the result. It is difficult to explain to them what is going on with our children- think of how many DOCTORS don't know or understand this disease- how can we explain it to everyone who is involved with our children? Don't feel badly about keeping him well- that is why God gave us our Mother's intuition. Hope you feel well soon.

Holly Rubio

am i over reacting?

Hi everyone, im so fustrated right now. As a rule i try to avoid anyone who is sick, because Matt and I catch everything we are exposed to. I cant for the life of me, get it through some family members thick heads, that we cannot expose ourselves to thier germs, be it through direct contact with them or by being around someone who has been around them. Example: my sister calls Tuesday morning, she is very sick with respitory illness and vomiting, she babysits 3 boys, and she needs someone to drive them to school because she is to ill to do it. (and will not take the day off from babysitting, she cant afford to) She calls me of course and i would do anything to help my sister, but this to me is just putting me and Matt at risk. The boys are fine, but can't they carry her "bug" to us, without them getting sick from it?? Or am i overreacting?? Needless to say we are on the phone and she got me, after long deliberation and procrastination, i ended up driving the boys. Here it is Friday and Matt and i are sick with same syptoms as my sister. Last night was so bad for Matt, he started coughing and refluxing, that his nurse had to turn off his overnight feeding. And he is coughing up a storm again tonight, but at least he is keeping down the g-tube feeding so far. Once again can i be overreacting? Im a "better safe than sorry" kinda gal, and i just wish some family members outside my immediate homefront would respect that, i have explained over and over again about our mito, and how our catching "bugs" really affects us and how hard it is to bounce back. I know my sister doesnt want to see us sick, but i dont think she is grasping that me and Matt dont need bad "germs" to feel sick, we are feeling sick all the time just from the mito alone. She has also said to me if i dont allow me and Matt to be exposed to some germs we will never be able to fight off germs. Hell i know that, but to jump from a frying pan into a fire, just dont seem right to me and now im kicking myself for giving in on Tuesday. What do you all think. Am i overreacting?? I just dont know anymore. Barb Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions.

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