now for somthing serious, Ill try to keep it clean (please consider)

[Guest guest]

Yep its true I can be serious, I just prefer to crack a joke when I

can because serious isnt all that pleasant most of the time, as most

of us know first hand. Im sorry for the part Ive played in bringing

up this vote but in a way I think its a good thing because it brings

up something that needs to be faced here and in our lives in general.

We ALL suffer, whether we are the patient or we are the caregiver, or

maybe we just are trying to learn about this terrible and

misunderstood disease, if you think you are not suffering you are

kidding yoursefl, and likely setting yoursefl up for one whale of a

comeuppence.

Ive told you my story before, and its not unlike the stories of most

of the longtimers in here, years and years of suffering, most of them

with few or no answers then the long dreaded letters CNS, and again

few answere, lots and lots of drugs then fewer answers.

So what am I getting at? Simple, and I hope those of you who are

feeling at odds with parts of the group over little, and in the big

picture, unimportant things, are paying attention because it is to you

that i am addressing this, it is OUR SUFFERING, OUOR QUEST FOR

ANSWERS, OUR CONTINUING HUNT FOR THE RIGHT DRUGS, OOUR ONGOING BATTLE

FOR THE RIGHT DOCTORS, MEDS, TREATMENTS, DIAGNOSIS, SEFLCARE,

FINANCIAL, EMOTIONAL, HEALTH AND EVERY OTHER KIND OF CARE, OUR

COMBINED NEED FOR LOCATING THE ONE CAUSE OF THIS SCOURGE THAT HAS

RUINED EACH AND EVERY ONE OF OUR LIVES THAT HAS FORCED US, SOME

WILLING, SOME KICKING AND SCREAMING, SOME JUST BLUNDERING INTO IT BUT

IN THE END ALL TOGETHER INTO A BROTHERHOOD WHETHER WE LIKE IT OR NOT A

BROTHERHOOD IN SARCOIDOSIS TO FIGHT, FIGHT AGAINST THE STUPIDITY OF

THE MEDICAL COMUNITY, TO FIGHT FOR THE CARE WE DESERVE AND DEMAND FOR

OURSELVES AND OUR BRETHERN, TO FIGHT FOR THE CONCERN THE WE HAVE

EARNED JUST BY THE RIGHT OF BEING HUMANS, TO FIGHT BECAUSE NONE OF US

DESERVE TO SUFFER LIKE THIS NO MATTER WHAT WE DONT DESERVE THIS! WE

DID NOTHING! THIS HAPPENED TO US WE DID NOT HAPPEN TO IT!

So in the end, does it really matter if I tend to say Damn and you

dont? Or does it matter that I love and care enough about you just by

virtue of our brotherhood that I would spend days or weeks or whatever

it takes to find out what I could to help you if you were sick, and

believe with all my heart that you would do the same because we have a

special bond?

In the end, does it really matter that I tend to end many of my posats

with God bless you, of Allah be with you, of may the Great Clam not

nip you in the fanny, of may Bob be nice to you, or does it matter

more that I care enough that I want nothing but the best for you and I

care enough that I pray for you, if you dont believe have I harmed

you? Or instead have I simply in yor view sent you good wishes and

extended the goodwill and love of a brotherhood that is TOO DAMNED

IMPORTANT AND VITAL TO THE LIVES OF EVERY ONE OF US TO RISK OVER THIS

RIDICULES ARGUMENT WHEN IT AFFECTS THE LIVES OF (OUR) PEOPLE, PEOPLE

WHO ARE ALREADY SUFFERING TERRIBLE EVERY DAY, WE KNOW THIS FROM OOUR

OWN SUFFERING, SO MUCH SO THAT THEY ARE CRYING OVER AN ARGUMENT THAT

IS NOTHING IF NOT A WASTE OF TIME AND ENERGY BY PEOPLE WHO HAVE LITTLE

ENERGY TO WASTE.

So my friends, I ask you this one question, are you willing to risk

something so vital, so essential to the daily survival of your own

brethern, people who depend upon YOU over something so small? Because

it is you know, small and terribly unimportant in the larger picture,

take a moment to picture it in your mind before you take umbrage, a

cuss word, even the worst you can think of, the very act of which

proves youve heard them all before, against someones needs, someone

you know, someone you have listened to, someone you know is suffering

physically and mentally everyday, how do they compare????????????

A prayer, can you really say youve never been exposed to them? I

thought not, compare this horror,,,,,,,,,to the suffering you know is

going on on the other end of the computer screed you staring

into,theres the real horror, can you really turn your back on that?

ITS ALL ABOUT COMPASSION FOLKS, I KNOW YOUR ALL GOOD PEOPLE, IVE SEEN

IT, DONT LET THE LITTLE STUFF STOP YOU FROM DOING WHAT WE ALL KNOW IS

RIGHT FORGET ABOUT THIS GARBAGE AND LETS TAKE CARE OF EACH OTHER!

AND THE HELL WITH WHETHER YOU LIKE IT OR NOT, GOD BLESS YOU ALL!

STU