Re: Sarc clinic at University of ton Medical Center, SC

[Guest guest]

Sharon,I saw the MUSC (Medical University of South Carolina) sarcoidosis specialist in ton. He was more interested in his latest book than he was in my problem. I went there from Florida so was a trip for me. I was not impressed. I've heard others say he was great. Not for me though. This was several yrs ago. I now see a sarcoidosis specialist at s Hopkins in Baltimore, MD. He is the most caring and compassionate doctor I've ever had...plus he really knows his stuff. Blessings,Beckybirthn905 wrote: I have recently joined

your group and am so thankful to have found you. I was finally diagnosed with NC in Nov at Duke University Hospital I'm currently under the care of a neurologist along with my primary care MD. (Started out on 60 mg prednisone/day and had to reduce to 40 mg because I developed pancreatitis, cholecystitis and gallstones and they didn't want to do surgery on the higher dose of pred) Had surgery 3 weeks ago and everything went fine. I had a follow-up MRI with contrast this a.m. and will wait to see what the neurologist suggests we do next. I have so many questions! Am wondering if anyone knows about the clinic in ton. Is it an advantage to connect with a specialist in NeuroSarc since it is relatively rare? My doctors at Duke are great but I know none of them specializes in neurosarcoidosis. Thanks for letting me join you, Sharon "Life is what happens between our plans"

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[Guest guest]

Sharon welcome to this wonderful group, we are like family here, so we are glad you found us, but sorry you have to deal with NS. and I love your saying,

" Life is what happens between our plans " I will try to remember this one. Marla

I have recently joined your group and am so thankful to have found

you. I was finally diagnosed with NC in Nov at Duke University Hospital

I'm currently under the care of a neurologist along with my primary

care MD. (Started out on 60 mg prednisone/day and had to reduce to 40

mg because I developed pancreatitis, cholecystitis and gallstones and

they didn't want to do surgery on the higher dose of pred) Had surgery

3 weeks ago and everything went fine. I had a follow-up MRI with

contrast this a.m. and will wait to see what the neurologist suggests

we do next. I have so many questions! Am wondering if anyone knows

about the clinic in ton. Is it an advantage to connect with a

specialist in NeuroSarc since it is relatively rare? My doctors at Duke

are great but I know none of them specializes in neurosarcoidosis.

Thanks for letting me join you,

Sharon

" Life is what happens between our plans "