Team Sarcoidosis Walk

[Guest guest]

I am utterly astonished two friends each donated $50.00 each for me

to walk my mile.

And one of the servers at a restaurant we go to w

ants to walk with me.

This is blowing me away, these people are not rich.

You know how this darn disease effects your sense of self worth and

all the other stuff.

I am in training for this walk because I will do it if I have to

crawl, no I can't do that cuz I would not be able to get up from the

crawling position.

When you meet me you will understand the signifigance of my wanting

to do this walk.

Rhe longest I have walked in 5 years was from the front door of our

supermarket to the meat counter at the back of the store, and I only

did that one time.

I am so excited by the response to my walk donation invitation.

I am so pumosaed up for this. I have so many good things in the near

future. Seeing Dr.Baughman, and the Indy Conference. The only thing

that is not nice is going to small claims court because of some

problems with my fall on the bus steps.It's a long story but the

president and vice president told me I would not be allowed on the

bus because of my falling while trying to board the bus after I had

hurt my Right shoulder when my scooter tipped over the night before.

When it tipped I hit my right shoulder on the curb.

Our bus had high twelve inch steps, They were difficult for me but I

could make it up them until my shoulder started to freeze and I

couldn't grab onto the rail on the dashboard on the bus when I was

trying to get back on it at 9PM. The officials of the senior center

came to our room the next morning and told bob and I that we would

not be allowed to ride the bus for the rest of the trip because I was

to much of risk (supposedly this was told to them by the bus driver

when he reported what had happened on his bus). After we got back we

went to the senior center to ask when we would receive the money they

said would be refunded to us. This began a series of lies on their

part, they now deny every saying anything like this to us.

No one asked if we had money or a credit card, we were just abandoned

in a hotel 5 hours from our home. I am not worried about the outcome,

we know what they said and so do they, the rest is in the hands of

the MAN upstairs. If they want to lie under oath that's their problem.

Any way, on to a happier note. did I tell you my bone marrow is

beginning to produce red blood cells, No IV's for the last two weeks

and I don't have to go back until October to be rechecked. I can tell

if it is going down by the palpitations and the consistancy of my

blood when I check my blood sugar.

Hope everyone will have a nice weekend. I look forward to reading the

digest each morning. I sure wish we lived closer to each other.

Judy in PA