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The onset of my attack started out with optic neuritis. My vision was returned with solumedrol IVs; however, I do have damage to this eye when they did testing.

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I underwent a visual evoked potential test this week because vision in

my right eye has not been good. It never seemed to get better even

after cataract surgery. Seems there is damage to my optic nerve. I am

scheduled for a Goodmann visual field test in April and an appointment

with a neurologist/ophthalmologist. It never ends... Anyone else with

this problem? -

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I underwent a visual evoked potential test this week because vision inmy right eye has not been good. It never seemed to get better evenafter cataract surgery. Seems there is damage to my optic nerve. I amscheduled for a Goodmann visual field test in April and an appointmentwith a neurologist/ophthalmologist. It never ends... Anyone else withthis problem? -

,

This is one of the biggest problems with sarcoidosis-- it's effects on our eyes. There are many levels of Visual field tests, and Goodman is the machine -- the Ophthalmologist is going to do a version that will tell him what part of the brain in the optic center that is compromised.

It may have been that your intraocular pressure went high, and you may have "warped" the optic nerve or the retina or macula. The other way they describe it is to say you've got some "bulging " of the optic nerve.

If this nerve becomes distorted- then the light rays don't go up the nerve in a direct line. It's like looking into a straw that is slightly bent.

If it is optic neuritis-- inflammation of the optic nerve, then steroids may help to bring that inflammation down. It is also important to be very aware as to whether you are becoming more light sensitive (photophobic). This is a sign that the iritis or uveal tract is becoming inflammed. This in turn is what can increase the intraocular pressure-- and you end up with an "Acute Angle Closure Glaucoma.". If eyedrops don't reduce the pressure quickly-- then the Ophthalmologist may decide that you need to have laser surgery to reduce the pressure. What they do is call YAG LASER, and this actually makes an incision in the iris of eye-- opening it so that the pressure is releaved.

I know it takes time to get into specialists like the Optical Neurologist-- and that you may have to wait until April. If you end up with any of the signs of photophobia, eye pressure or headache, flu like symptoms that don't include fever-- then call and let them know what is happening. These are signs of Glaucoma-- and as we all know-- this is top of the list as the silent cause of blindness.

Take care,

Tracie

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Hi, In the beginning of my fight with N.S. I experienced weakness of optic motor nerve #6 of my left eye which caused it to not move the same as my right eye giving me double vision (MRI picked it up). Within three weeks of steroid treatment that was cured. Try to move up your appointment, you don't want to fool around with your vision. Get an MRI to show optic nerve damage, if you have not already. best regards, Rickwendy_cidp wrote: I underwent a visual evoked

potential test this week because vision inmy right eye has not been good. It never seemed to get better evenafter cataract surgery. Seems there is damage to my optic nerve. I amscheduled for a Goodmann visual field test in April and an appointmentwith a neurologist/ophthalmologist. It never ends... Anyone else withthis problem? -

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Thanks for all your replies. I was checked for all the other things

that could be wrong. They did discover secondary cataracts in December

and laser surgery was done then but I didn't have much improvement.

The ophthalmologist explained there was a lesion along my optic nerve

that has destroyed some of the nerve cells and this was caused by my

disease. They are not sure I actually have NS, I have been diagnosed

with a demyelinating disease. NS and CIDP combined are the closest

diagnosis they have found and are treating me as though I have both of

them but they have never found evidence of granulomas. It's confusing.

At any rate, only the ophtho/neuro will know exactly how to treat this

problem if there is any way to treat it. The ophtho didn't think there

was a treatment for this particular cause. He was quite dejected. He's

very good and dedicated and is used to being able to help. -

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