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I am sure this event has meant a lot to you. It was so nice of your sister

to put it together. Hope they raise a bunch in honor of your family. Let

us know how it goes. :)

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

writing conference

> My sister is Maribeth Fischer. look below for what she is pulling

> together in honor of my kids. I am so touched. For those of you who live

> in land, Delaware, NJ, PA, etc. please pass the word on.

>

> Anne

> www.caringbridge.org/wi/zachsam

>

> Award-winning authors to participate in Writers at the Beach

> conference

>

> The fact that there are four independent bookstores between Lewes

> and Bethany, not to mention the annual Milton Poetry Weekend in

> Milton, dozens of book clubs, writing groups and a history of

> well-attended bookstore-sponsored readings, attests to the fact that

> Rehoboth Beach and its surrounding communities is an environment that

> fosters the literary arts. Yet there has never been one area-wide event,

> similar to the Film Festival or Jazz Festival - to bring together writers

> and readers of various genres. Writers at the Beach: Pure Sea Glass, a

> day-long writing conference, will take place March 5 at Crabber's Cove in

> Dewey Beach.

>

>

> The first of what will be an annual event, Writers at the Beach has

> already attracted a number of nationally known and award winning authors,

> including Carolyn Parkhurst, whose novel, " Dogs of Babel " was featured as

> a " Today Show " Book Club pick, and Sheri Reynolds, author of " The Rapture

> of Canaan, " an Oprah book selection.

>

>

> The conference, organized by the newly formed nonprofit Rehoboth

> Beach Writers' Guild, will include writing workshops, informal discussions

> with authors, author readings and children's story hours. To date, the

> slate of authors scheduled to be in attendance at the conference includes

> the following individuals.

>

>

> . Brad Barkley, whom " Book " magazine calls " one of the breakthrough

> authors you need to know. " Barkley is the author of two novels, " Money

> Love, " named one of the best books of 2000 by the " Washington Post, " and

> " 's Automotive Repair Manual, " a Book Sense 76 selection.

>

>

> . Liam Callanan, author of the novel " Cloud Atlas, " is also a

> frequent contributor to " Slate, " " Forbes, " " The New York Times Book

> Review, " " The Washington Post " magazine and other periodicals.

>

>

> . Lamotte is the author of " Pure Sea Glass, " featured this

> summer in " Coastal Living, " and the inspiration for the conference's

> theme.

>

>

> . is the author of the poetry collection, " Science of

> Desire. " Her second collection, " Too Much of This World, " which has

> already received the Picioni Poetry Prize, " is forthcoming in

> 2005. She is also the winner of the 2003 National Writers Union Poetry

> Award.

>

>

> . O'Sullivan is a features editor at the " Washingtonian "

> magazine. He has published personal essays and commentaries in " The New

> York Times, " " Newsday, " " National Geographic Traveler, " " The Washington

> Post " and the " North American Review " among others.

>

>

> . Pietrzyk is the author of two " Pears on a Willow Tree " and

> most recently, " A Year and a Day. " Pietrzyk has also been published in a

> number of literary magazines.

>

>

> . Terry Plowman is the editor and publisher of " Delaware Beach

> Life. "

>

>

> . Debra Puglisi Sharp, author of " Shattered: Reclaiming a Life Torn

> Apart by Violence, " has appeared on " Oprah, " " 20/20, " the " Walsh

> Show " and other national and regional talk shows. She is a nurse at Beebe

> Medical Center and lives in Milton.

>

>

> " We're still waiting to hear from a few more poets and memoirists,

> but to already have a lineup of such prominent authors is incredibly

> exciting, " said Maribeth Fischer, the conference's founder. " Even more

> amazing is that every one of these authors is participating as a

> volunteer. Their generosity is overwhelming and wonderful. " In addition,

> Lamotte and Celia Pearson, the photographer of " Pure Sea Glass, "

> have donated photographs of their book to be used for publicity, and

> Rehoboth.com has already signed on as a sponsor by creating and

> maintaining a website for the newly founded organization.

>

>

> One hundred percent of the proceeds from Writers at the Beach: Pure

> Sea Glass will be donated to charity, in this case, the United

> Mitochondrial Disease Foundation (UMDF). Mitochondrial disease isn't

> something most people have heard of, but it has hit close to home for

> Fischer, whose sister has four children, all of whom are afflicted with

> this disease. Mitochondrial disease, which disrupts the normal conversion

> of food into energy, results in a gradual but deadly deterioration of

> life-sustaining organs. Fischer's nephews, Sam, 7, and Zachary, 12, are

> severely afflicted, and the money raised will be donated to UMDF in their

> honor. Although this won't affect Fischer's nephews, it will benefit UMDF

> research and the many families this organization helps.

>

>

> Although the impetus for the conference began with Fischer's desire

> to do something on behalf of her nephews, the longterm goal is to have the

> conference evolve into a weekend-long festival. Fischer, who has

> participated in a number of national writing conferences and festivals, is

> enthusiastic about Writers at the Beach evolving into a yearlong festival.

> " I don't see how this can't be a win-win situation for our community, "

> Fischer said, " for the writers and participants who attend the conference

> and for the charity we simultaneously raise money for. "

>

>

> Writers at the Beach: Pure Sea Glass is seeking community donors and

> sponsors to help fund the event. Fischer hopes the writers' generosity

> will inspire others, because they " need just about everything, from the

> printing of brochures to money to pay for stamps and copying costs.

> There's no such thing as a donation that's too small, " she said.

>

>

> For more information on the conference or about becoming a donor or

> sponsor, visit www.writersatthebeach.com, email mbfischer@..., call

> or write Writers at the Beach: Pure Sea Glass, P.O. Box 1326,

> Rehoboth Beach DE 19971.

>

>

>

>

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