Re: Something bugging me too!

[Guest guest]

,

I totally agree, when I first saw that I was not overly concerned,

certainly a mild case that could be corrected in 3-4 casts could be

ready for the tenotomy at that age. It wasn't until I started seeing

some of the other red flags that got me worried. I think -- if you

are reading Christee -- she has done just the right thing in canelling

that tenotomy.

allison

> Actually, not really bugging me, but I was wondering...When Christee

> first posted and said they wanted to do the tenotomy on her daughter,

> quite a few people said that she was WAY TOO YOUNG, etc...

> Assuming you've been correctly treated from birth, even with the first

> cast at a week old, 5 casts would make a baby only 6 weeks. My

> daughter had 6 casts (#3 twice, our doc was out of town and the other

> doc couldn't do #4), and started casting at 1 week so she was 7 weeks

> for her tenotomy. And I found alot of others saying their kids had the

> tenotomy at 6, 7, 9 weeks. So that's not really crazy to say her baby

> is ready for the tenotomy now, based on age/length of treatment,

> right? (Barring the other issues with her treatment, I mean)

> Just a thought...

>

[Guest guest]

I think what people were saying--and what Christee was most worried about--was

that Lilee was too young for was being put under (the doctor was going to do the

tenotomy under general anesthesia), not getting to eat for 6 hours, having an IV

put in. I don't think anyone made an issue of her not having had enough casts,

though other issues did come up that are making this doctor sound not quite

right.

Most babies who start with the Ponseti method within the first few weeks will

have tenotomies at close to 2 months old and into the FAB before they are 3

months old. That's the way it should be!

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

wrote:

Actually, not really bugging me, but I was wondering...When Christee

first posted and said they wanted to do the tenotomy on her daughter,

quite a few people said that she was WAY TOO YOUNG, etc...

Assuming you've been correctly treated from birth, even with the first

cast at a week old, 5 casts would make a baby only 6 weeks. My

daughter had 6 casts (#3 twice, our doc was out of town and the other

doc couldn't do #4), and started casting at 1 week so she was 7 weeks

for her tenotomy. And I found alot of others saying their kids had the

tenotomy at 6, 7, 9 weeks. So that's not really crazy to say her baby

is ready for the tenotomy now, based on age/length of treatment,

right? (Barring the other issues with her treatment, I mean)

Just a thought...

[Guest guest]

Also, I think Christee wrote that her child was a month old, indicating just

around 4 weeks... which does seem early.

wrote:,

I totally agree, when I first saw that I was not overly concerned,

certainly a mild case that could be corrected in 3-4 casts could be

ready for the tenotomy at that age. It wasn't until I started seeing

some of the other red flags that got me worried. I think -- if you

are reading Christee -- she has done just the right thing in canelling

that tenotomy.

allison

> Actually, not really bugging me, but I was wondering...When Christee

> first posted and said they wanted to do the tenotomy on her daughter,

> quite a few people said that she was WAY TOO YOUNG, etc...

> Assuming you've been correctly treated from birth, even with the first

> cast at a week old, 5 casts would make a baby only 6 weeks. My

> daughter had 6 casts (#3 twice, our doc was out of town and the other

> doc couldn't do #4), and started casting at 1 week so she was 7 weeks

> for her tenotomy. And I found alot of others saying their kids had the

> tenotomy at 6, 7, 9 weeks. So that's not really crazy to say her baby

> is ready for the tenotomy now, based on age/length of treatment,

> right? (Barring the other issues with her treatment, I mean)

> Just a thought...

>

[Guest guest]

no, I don't think she's too young. too clarify, I don't think her foot is

corrected enough to have the tenotomies yet.

wrote:Actually, not really bugging me, but I

was wondering...When Christee

first posted and said they wanted to do the tenotomy on her daughter,

quite a few people said that she was WAY TOO YOUNG, etc...

Assuming you've been correctly treated from birth, even with the first

cast at a week old, 5 casts would make a baby only 6 weeks. My

daughter had 6 casts (#3 twice, our doc was out of town and the other

doc couldn't do #4), and started casting at 1 week so she was 7 weeks

for her tenotomy. And I found alot of others saying their kids had the

tenotomy at 6, 7, 9 weeks. So that's not really crazy to say her baby

is ready for the tenotomy now, based on age/length of treatment,

right? (Barring the other issues with her treatment, I mean)

Just a thought...

[Guest guest]

It seems that Gabe is the exception in most of these " early months " discussions,

but at 12 weeks he did need to be put under for his tenotomies because he fought

so with the doctors. They couldn't hold him still enough to perform the

tenotomies without it. They used gas and it was adequate enough anesthesia to

get the job done. He did not need intubation. I wouldn't think they would need a

IV for this simply a procedure. I believe I was allowed to breast feed up until

2 hours post-surgery. There is always the Chlorhydrate sedation too. Ponseti

uses this. It knocks them out for about 30 minutes.

Stacie Rich wrote: Also, I think Christee wrote that

her child was a month old, indicating just around 4 weeks... which does seem

early.

wrote:,

I totally agree, when I first saw that I was not overly concerned,

certainly a mild case that could be corrected in 3-4 casts could be

ready for the tenotomy at that age. It wasn't until I started seeing

some of the other red flags that got me worried. I think -- if you

are reading Christee -- she has done just the right thing in canelling

that tenotomy.

allison

> Actually, not really bugging me, but I was wondering...When Christee

> first posted and said they wanted to do the tenotomy on her daughter,

> quite a few people said that she was WAY TOO YOUNG, etc...

> Assuming you've been correctly treated from birth, even with the first

> cast at a week old, 5 casts would make a baby only 6 weeks. My

> daughter had 6 casts (#3 twice, our doc was out of town and the other

> doc couldn't do #4), and started casting at 1 week so she was 7 weeks

> for her tenotomy. And I found alot of others saying their kids had the

> tenotomy at 6, 7, 9 weeks. So that's not really crazy to say her baby

> is ready for the tenotomy now, based on age/length of treatment,

> right? (Barring the other issues with her treatment, I mean)

> Just a thought...

>