Quinine

[Guest guest]

I believe that tonic water is a source of quiine. Also what state ddo you live in, it maybe available in other states near you. Judy in PANeurosarcoidosis wrote: There are 25 messages in this issue.Topics in this digest:1.1. Re: Birthday Reminder From: Barb N1.2. Re: Birthday Reminder From: Barb N1.3. Re: Birthday Reminder From: Marla Bramer2a. Re: severe pain From: Rick Jack2b. Re: severe pain From: Solberg3a. Re: strange question From: Solberg3b. Re: strange question From: Marla Bramer3c. Re: strange question From: Marla Bramer4a. Re: listen to your doc From: mosaicgirl14b. Re: listen to your doc From: Marla Bramer5a. Has anyone

been on Advair? From: wendy_cidp5b. Re: Has anyone been on Advair? From: Connie Griffis5c. Re: Has anyone been on Advair? From: katskreations1@...6.1. ER Visit From: topdat@...6.2. Re: ER Visit From: Marla Bramer6.3. Re: ER Visit From: Mac Tosh6.4. Re: ER Visit From: J. Blanchett6.5. Re: ER Visit From: topdat@...6.6. Re: ER Visit From: topdat@...6.7. Re: ER Visit From: tiodaat@...7a. Re: [sPAM]Re: Humira denial- Marla!! From: Marla Bramer8a. Re: books about neurosarcoidosis From: Marla Bramer9a. Re: Fwd: A Parent's Wish From: Marla Bramer10a. No More Quinine, Now What? From: J. Blanchett10b. Re: No More Quinine, Now What? From: Sharon L. SchuckmanMessages________________________________________________________________________1.1. Re: Birthday

ReminderPosted by: "Barb N" cornflowerbluebarb@... cornflowerbluebarbDate: Fri Nov 16, 2007 6:54 am ((PST))Yeah Terri! Happy Happy Birthday!Cornflowerbluebarb of Arkansas--- Neurosarcoidosis wrote:> Reminder from: Neurosarcoidosis Yahoo! Group> http://groups.yahoo.com/group/Neurosarcoidosis/cal> > Terrie's Birthday !> Sunday November 18, 2007> All Day> (This event repeats every year.)> > Notes:> Happy Birthday, Terri !> tarbox5@...> > > All Rights Reserved> Copyright © 2007 > Yahoo! Inc.> http://www.yahoo.com> > Privacy Policy:> http://privacy.yahoo.com/privacy/us> > Terms of Service:> http://docs.yahoo.com/info/terms/> Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,

but rather to skid in sideways, body thoroughly used up, totally worn out and screaming, "WA-HOO, what a ride!!"The greatest single cause of atheism in the world today is Christians who acknowledge Jesus with their lips, then walk out the door and deny him by their lifestyle. That is what an unbelieving world simply finds unbelievable - Toby Mac____________________________________________________________________________________Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJMessages in this topic (283)________________________________________________________________________1.2. Re: Birthday ReminderPosted by: "Barb N" cornflowerbluebarb@... cornflowerbluebarbDate: Fri Nov 16, 2007 7:02 am ((PST))Happy Birthday Neisa! What a pretty name!Cornflowerbluebarb of Arkansas---

Neurosarcoidosis wrote:> Reminder from: Neurosarcoidosis Yahoo! Group> http://groups.yahoo.com/group/Neurosarcoidosis/cal> > Neisa's Birthday !> Saturday November 17, 2007> All Day> (This event repeats every year.)> > Notes:> Happy Birthday, Neisa !> > neisa@...> > > All Rights Reserved> Copyright © 2007 > Yahoo! Inc.> http://www.yahoo.com> > Privacy Policy:> http://privacy.yahoo.com/privacy/us> > Terms of Service:> http://docs.yahoo.com/info/terms/> Life should not be a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways, body thoroughly used up, totally worn out and screaming, "WA-HOO, what a ride!!"The greatest single cause of atheism in the world today is Christians

who acknowledge Jesus with their lips, then walk out the door and deny him by their lifestyle. That is what an unbelieving world simply finds unbelievable - Toby Mac____________________________________________________________________________________Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/Messages in this topic (283)________________________________________________________________________1.3. Re: Birthday ReminderPosted by: "Marla Bramer" mebramer@... marlabramerDate: Fri Nov 16, 2007 12:04 pm ((PST))Happy Birthday Terrie I hope you have a great day! Marla_____ From: Neurosarcoidosis [mailto:Neurosarcoidosis ] Sent: Thursday, November 15, 2007 9:56 PMTo: Neurosarcoidosis Subject: Birthday ReminderReminder from:Neurosarcoidosis Yahoo! GroupTitle:Terrie's Birthday !Date:Sunday November 18, 2007Time:All Day Repeats:This event repeats every year.Notes:Happy Birthday, Terri !tarbox5@...Yahoo! Greetings:Send a Yahoo! Greetinggs.yahoo.com>gs.yahoo.com> Yahoo! Shopping:Browse.yahoo.com> Yahoo! Shopping Gift Guide.yahoo.com> Get reminders on your mobile, Yahoo! Messenger, and email.Edit reminder optionsCopyright C 2007 Yahoo! Inc. All Rights Reserved |Terms of Service | Privacy PolicyMessages in this topic (283)________________________________________________________________________________________________________________________________________________2a. Re: severe painPosted by: "Rick Jack" jack11973@... jack11973Date: Fri Nov 16, 2007 7:56 am ((PST))Hi,It was a band of severe pain, it was so acute it's what got me to the hospital to get

tests which lead them to finding my sarc. I had numbness in my jaw, but no pain there. After the "banding" pain came the severe pain in my legs. Take your meds, keep a positive attitude and this will pass.best regards,RickAnne Schmidt wrote:I recently had an attack of severe pain in right jawto left arm and band of pain around breasts and back.Er hospital not my heart but neurosarc and adrenalcrisis has anyone else had this happen? I have readthe postings on the "band around chest" did it startwith pain? I turn 60 on the 21st and I feel 90 but Iam alive!!!!! Anne__________________________________________________________Get easy, one-click access to your favorites. Make Yahoo! your homepage.http://www.yahoo.com/r/hs ---------------------------------Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how.Messages in this topic

(4)________________________________________________________________________2b. Re: severe painPosted by: " Solberg" mary_s777@... mary_s777Date: Fri Nov 16, 2007 9:49 am ((PST))Anne, I just had it across my entire chest mainly on the left side. The pain was and still is sometimes excruciating. That's when they give me narcotics on top of my regular pain pills. Mine did start with pain. They still do heart tests here and there to be on the safe side though. I have to be careful not to do anything that is considered repetitive motion like vacuuming. Also not to lift anything more than 3 or 4 lbs. It doesn't take much to start it off again. When it even starts to act up I need to lay down and rest and I also do alot of praying. hugs S.Anne Schmidt wrote: I recently had an attack of severe pain in right jawto left arm and band of pain around breasts and back.Er hospital not my heart but

neurosarc and adrenalcrisis has anyone else had this happen? I have readthe postings on the "band around chest" did it startwith pain? I turn 60 on the 21st and I feel 90 but Iam alive!!!!! Anne__________________________________________________________Get easy, one-click access to your favorites. Make Yahoo! your homepage.http://www.yahoo.com/r/hs ---------------------------------Get easy, one-click access to your favorites. Make Yahoo! your homepage.Messages in this topic (4)________________________________________________________________________________________________________________________________________________3a. Re: strange questionPosted by: " Solberg" mary_s777@... mary_s777Date: Fri Nov 16, 2007 7:56 am ((PST))Marla, you may need a checkup with a ENT doc. You may have a sinus infection and just breathing entirely through your mouth thus getting extra

'parched'. I do that sometimes and also need to put something like chapstick on my lips nightly. It could also be an indication that there could be a nasal blockage which we also get with sarc. It may even be time for another sleep study. hugs S.Marla Bramer wrote: For the past few days/weeks, not sure I have been waking up in the middle of the night with parched lips, I wake up take a drink of water, lick my lips and do this “several” times a night, does anyone else have this or any insight to why this just started. Yes it’s very dry here, but we have a cool mist humidifier in our room going full blast all night??? Marla ---------------------------------Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how.Messages in this topic (5)________________________________________________________________________3b. Re: strange questionPosted by: "Marla

Bramer" mebramer@... marlabramerDate: Fri Nov 16, 2007 10:04 am ((PST))No I have not added or changed any meds in awhile? Last night I only wokeup twice? Marla _____ From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of tiodaat@...Sent: Thursday, November 15, 2007 3:54 PMTo: Neurosarcoidosis Subject: Re: strange questionI have been waking up in the middle of the night with parched lips, I wakeup take a drink of water, lick my lips and do this "several" times a night, Marla,Have you changed or added any new meds?_____ See what's new at AOL.com and Make AOL YourHomepage.Messages in this topic (5)________________________________________________________________________3c. Re: strange questionPosted by: "Marla Bramer" mebramer@... marlabramerDate: Fri Nov 16, 2007 2:22 pm ((PST)), Thanks for all the tips, I usually know when I have a sinus infection whichI do get, the lining of my Maxillary sinuses are thicken by the sarcoid wedo know that from an MRI, and went to an ENT who was the biggest A_ _ I haveseen, my Sarc doctor told me to do sinus rinses and I do, I should try arinse tonight to see if it makes a difference. And right now I can not add one more test to my life, just thinking aboutfighting the insurance company, and going to OT and Speech etc. is enough, Iam do for my yearly check up too, so all in good time, I'm sure you canrelate. I so appreciate everyones comments so much. Blessings, marla

Marla Bramer Independent Beauty Consultant Kay cosmetics mbramer@... www.marykay.com _____ From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of SolbergSent: Friday, November 16, 2007 7:53 AMTo: Neurosarcoidosis Subject: Re: strange questionMarla, you may need a checkup with a ENT doc. You may have a sinusinfection and just breathing entirely through your mouth thus getting extra'parched'. I do that sometimes and also need to put something likechapstick on my lips nightly. It could also be an indication that therecould be a nasal blockage which we also get with sarc. It may even be timefor another sleep study. hugs S.Marla Bramer wrote:For the past few days/weeks, not sure I have been waking up

in the middle ofthe night with parched lips, I wake up take a drink of water, lick my lipsand do this "several" times a night, does anyone else have this or anyinsight to why this just started. Yes it's very dry here, but we have acool mist humidifier in our room going full blast all night??? Marla _____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. Seehow.Messages in this topic (5)________________________________________________________________________________________________________________________________________________4a. Re: listen to your docPosted by: "mosaicgirl1" mosaicgirl1@... mosaicgirl1Date: Fri Nov 16, 2007 9:09 am ((PST))Becky,Thank you so much. You are in my prayers also.Terri Since my HSV1 pneumonia in August I have had ongoing problemsbreathing. The chest tightness was one aspect but I also experiencefrequent breathlessness from any activity, even mild activity.Yesterday my family GP gave me a sample of Advair to try. It's begunto help enormously. Once again it seems a steroid is the only thingthat make symptoms better! Has anyone else been on this medication? When I looked it up it seemed a dangerous choice, lots of risk and theusual nasty side effects - but I was so tired of lying on the couchbecause I couldn't breath well enough to do anything else. After muchsoul-searching I decided to give it a try in spite of the risks. Hereis the link on

Advair:http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a699063.html---------------------------------Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how.Messages in this topic (3)________________________________________________________________________5c. Re: Has anyone been on Advair?Posted by: "katskreations1@..." katskreations1@... alekat66Date: Fri Nov 16, 2007 7:35 pm ((PST))I have been on it quite a few years. I was on the 250 dose and now they increased me to 500 when I was having a slight attack from something. I have not noticed any ill effects. You have to ensure that you rinse your mouth after breathing it in. I am not sure if they told you that or not. I know initially no one told me.Kat************************************** See what's new at http://www.aol.comMessages in this topic

(3)________________________________________________________________________________________________________________________________________________6.1. ER VisitPosted by: "topdat@..." topdat@... stopdat2005Date: Fri Nov 16, 2007 10:00 am ((PST))Hey gang, I'm slowly climbing out of hiding and if you notice I said slowly.. I've started having this extreme shortness of breath that some of you are having, I can't walk from one room to another without gasping for breath, plus I've started having this pounding heart beat in my throat and neck along with the shortness of breath..I know we tend to blame everything on sarcoidosis, the doctors don't see it that way.. so I find myself lost again.hmmm.. On Monday night I had the most horrific throbbing pain in my right neck, radiating in to my shoulder and reaching up to my lower jaw.. I was nauseated and came close to upchucking several times but did not.. The only symptom I didn't

have for a heart attack was I wasn't clammy or sweating profusely.. Soo, I opted to just wait it out.. When my son got up for school, I told him I was sick and was gonna go to the ER, he offered to take me,but its onlly like 2 blocks away, and I drove myself.. Still having the pain in my neck.. they did a doppler, a ct scan of my head and ekg and lab work.. everything was normal except my kidney function tests, seems my kidneys are trying to shut down again.. === message truncated ===