Riboflavin question/regression ramblings

[Guest guest]

Does anyone know if riboflavin comes in chewable or liquid form?

Shel's neuro really thinks he should be on it.

The nuero appt. has made me think more about the regressions. When we

mentioned to him that Sheldon continues to lose signs, his response

was " Well, PDH Deficiency is progressive. " Which of course we know

but there's knowing that and then having to live with it. It

surprises me how easily I get used to the Sheldon things. If one of

my daughters forgot how to say Daddy (Sheldon used to point to his

head to sign Daddy) and didn't relearn it in 6 months (it still

hasn't come back) I would have been so scared.

My mother-in-law had Sheldon Sunday and had him walk much of the way

to the store (it's really not far but I wouldn't have done it), he's

been so tired since then that sometimes he can't sit up or feed

himself. So hard to see. It's also hard to leave him with someone,

she also fed him banana that wasn't mashed, I found that out when it

came back up 7 hours after she fed it to him. She means well, it's

just hard to know all the details about caring for Sheldon.

Just rambling... thanks for listening.