Re: Re: Immunoglobulin level-- for

[Guest guest]

My eight year old daughter, when 11 months old, had a platelets levels

almost down to 0 and they said it was temporary bone marrow suppression due

to her croup. At first they thought she might have leukemia, but she

thankfully didn't. She is one I have been concerned about due to her

paleness/dark circles along with some eye problems that can't be explained,

but she hasn't shown any abnormal labs thus far.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

Re: Immunoglobulin level-- for

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> High platelets mean inflammation. Evan sometimes has high platelets

> and my nephew with Crohn's had platelets over 900 (900,000) when he

> was inpatient at Cleveland Clinic last year.

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> Those notes on the immune system came from Dr. Jane El-Dahr who is an

> immunologist at Tulane. I have know her for almost 10 years and she

> is great at explaining immunology in terms that parent can understand.

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> Please contact mito-owner with any problems or questions.

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