Re: has graduated to the DBB bar;0)

[Guest guest]

Krishna,

Personally I would highly recommend you put your shoes at 70 degrees and leave

them there! If she was corrected properly, she came out of her last cast set at

70, so putting her in to 70 degrees shoes would not be a new discomfort.

However, if you are pulling them in to 20 degrees, you are allowing her to lose

correction, allowing her bones/tendons/etc., to shrink up to that 50 rather than

remaining at the 70 they were at. If they shrink up to fit the 5 0 you won't

get them back to 70 with out a painful fight and possibly more casting again.

I understand it's hard as a parent to look at what appears to be un-natural, but

practically every normal foot is capable of moving out to 70 degrees adn it's

not painful to the child, yet it is critical to her long - term recovery! If at

all possible now, put your shoes back to 70 and keep them there. Hopefully she

has not lost correction and will have no problems.

s.

has graduated to the DBB bar;0)

HI Everyone-

Sounds like I have missed some intereting posts. I wanted to share

some exciting news with all of you. My daughter had her casts taken

off last Wednesday and went into the DBB bar! So it has only been

four days and she has been a trooper so far. I know it is more

frustrating for her to be in it because she can't move her feet

independently than hurting them. I cried the first night she was in

them, but I realize this is the hardest part of the treatment!

Question: I know you are suppose to have the bar at 70 degrees, but I

set it about 50-55 so she can be comfortable and plan on bumping it up

to 70. Is this bad to start with less degrees and bump it up? I

asked my doctor and he said it was okay, I just don't want her to

relapse since we did not get the tenetomy. Have any of you out there

started the bar this way?

Now I can give a bath--it is exciting! I am sure I will now

ask all the questions of the fun experiences all of you have had or

having with your kiddies in the DBB bar...

Krishna

[Guest guest]

If she is tolerating it well, I doubt any harm has been done. I do understand,

really, but just keep reminding yourself it's a little (discomfort) now or a

whole lot later on, kwim?

From: Krishna Cauntay

To: nosurgery4clubfoot

Sent: Sunday, October 02, 2005 11:57 AM

Subject: Re: has graduated to the DBB bar;0)

thanks you two-- i just set her bar to 70-- i am just so worried about her

feelings--she seems to be fine. i hope i didn't make her relapse

Goodin wrote:Glad I didn't post before reading

everything. I would have said the same think, so I just wanted to second what

ee said!

has graduated to the DBB bar;0)

HI Everyone-

Sounds like I have missed some intereting posts. I wanted to share

some exciting news with all of you. My daughter had her casts taken

off last Wednesday and went into the DBB bar! So it has only been

four days and she has been a trooper so far. I know it is more

frustrating for her to be in it because she can't move her feet

independently than hurting them. I cried the first night she was in

them, but I realize this is the hardest part of the treatment!

Question: I know you are suppose to have the bar at 70 degrees, but I

set it about 50-55 so she can be comfortable and plan on bumping it up

to 70. Is this bad to start with less degrees and bump it up? I

asked my doctor and he said it was okay, I just don't want her to

relapse since we did not get the tenetomy. Have any of you out there

started the bar this way?

Now I can give a bath--it is exciting! I am sure I will now

ask all the questions of the fun experiences all of you have had or

having with your kiddies in the DBB bar...

Krishna

[Guest guest]

That is ssoooooo true! It is their Normal and they don't know anything else so

they just go with it naturally.

s.

has graduated to the DBB

bar;0)

>

>

> HI Everyone-

> Sounds like I have missed some intereting posts. I wanted to share

> some exciting news with all of you. My daughter had her casts

taken

> off last Wednesday and went into the DBB bar! So it has only been

> four days and she has been a trooper so far. I know it is more

> frustrating for her to be in it because she can't move her feet

> independently than hurting them. I cried the first night she was

in

> them, but I realize this is the hardest part of the treatment!

> Question: I know you are suppose to have the bar at 70 degrees,

but I

> set it about 50-55 so she can be comfortable and plan on bumping it

up

> to 70. Is this bad to start with less degrees and bump it up? I

> asked my doctor and he said it was okay, I just don't want her to

> relapse since we did not get the tenetomy. Have any of you out

there

> started the bar this way?

> Now I can give a bath--it is exciting! I am sure I will

now

> ask all the questions of the fun experiences all of you have had or

> having with your kiddies in the DBB bar...

> Krishna

>

>

>

>

>

[Guest guest]

thanks you two-- i just set her bar to 70-- i am just so worried about her

feelings--she seems to be fine. i hope i didn't make her relapse

Goodin wrote:Glad I didn't post before reading

everything. I would have said the same think, so I just wanted to second what

ee said!

has graduated to the DBB bar;0)

HI Everyone-

Sounds like I have missed some intereting posts. I wanted to share

some exciting news with all of you. My daughter had her casts taken

off last Wednesday and went into the DBB bar! So it has only been

four days and she has been a trooper so far. I know it is more

frustrating for her to be in it because she can't move her feet

independently than hurting them. I cried the first night she was in

them, but I realize this is the hardest part of the treatment!

Question: I know you are suppose to have the bar at 70 degrees, but I

set it about 50-55 so she can be comfortable and plan on bumping it up

to 70. Is this bad to start with less degrees and bump it up? I

asked my doctor and he said it was okay, I just don't want her to

relapse since we did not get the tenetomy. Have any of you out there

started the bar this way?

Now I can give a bath--it is exciting! I am sure I will now

ask all the questions of the fun experiences all of you have had or

having with your kiddies in the DBB bar...

Krishna

[Guest guest]

Glad I didn't post before reading everything. I would have said the same think,

so I just wanted to second what ee said!

has graduated to the DBB bar;0)

HI Everyone-

Sounds like I have missed some intereting posts. I wanted to share

some exciting news with all of you. My daughter had her casts taken

off last Wednesday and went into the DBB bar! So it has only been

four days and she has been a trooper so far. I know it is more

frustrating for her to be in it because she can't move her feet

independently than hurting them. I cried the first night she was in

them, but I realize this is the hardest part of the treatment!

Question: I know you are suppose to have the bar at 70 degrees, but I

set it about 50-55 so she can be comfortable and plan on bumping it up

to 70. Is this bad to start with less degrees and bump it up? I

asked my doctor and he said it was okay, I just don't want her to

relapse since we did not get the tenetomy. Have any of you out there

started the bar this way?

Now I can give a bath--it is exciting! I am sure I will now

ask all the questions of the fun experiences all of you have had or

having with your kiddies in the DBB bar...

Krishna

[Guest guest]

First off, yay for ! And yay for mama who can now cuddle up

with 's sweet little castless feet!

And to respond to this thread...

Same here, I would have said the same thing as ee and

. 70 degrees is not uncomfortable, especially when the last

cast was set to 70 degrees. A lesser degrees may even be

uncomfortable because of the overcorrection. Darbi's doc thinks 70

is too much, but once that other doc put her foot at 70 degrees (even

more possibly) in her last healing cast she's been set to 70 ever

since and never had an issue. I am forever grateful for that unknown

doc who helped him cast her that last time... I often wonder where

her foot would be now if we'd left it at 55 degrees. I will never

know for sure because we're beyond that now. The thought that babies

can't handle the abduction... pure bunk. If babies couldn't handle

it... none of our children would be able to either. It's this kind

of thinking that has pulled our doc (and his colleague - both Ponseti

Certified/trained) out of the group of physicians who can treat

clubfoot without surgery here. They don't abduct to 70 in casts,

they don't set the FAB to 70, they have numerous babes who don't

tolerate the FAB and they have gone to AFO's with many children and

are still doing surgeries. Point, set, match... failure rates are

going to skyrocket here. They already have from what I can tell. Very sad.

I agree it does look weird, but you get used to it and soon it only

looks normal. So normal in fact that seeing any other abduction on a

brace sends up red flags and uncertainty about the correction. So I

suggest you put it back to 70 and let her settle into the brace. She

will be happy very soon.

Hugs and congrats! On your way now!

Kori

At 10:15 AM 10/2/2005, you wrote:

>Glad I didn't post before reading everything. I would have said the

>same think, so I just wanted to second what ee said!

>

>

>

> has graduated to the DBB bar;0)

>

>

>HI Everyone-

>Sounds like I have missed some intereting posts. I wanted to share

>some exciting news with all of you. My daughter had her casts taken

>off last Wednesday and went into the DBB bar! So it has only been

>four days and she has been a trooper so far. I know it is more

>frustrating for her to be in it because she can't move her feet

>independently than hurting them. I cried the first night she was in

>them, but I realize this is the hardest part of the treatment!

>Question: I know you are suppose to have the bar at 70 degrees, but I

>set it about 50-55 so she can be comfortable and plan on bumping it up

>to 70. Is this bad to start with less degrees and bump it up? I

>asked my doctor and he said it was okay, I just don't want her to

>relapse since we did not get the tenetomy. Have any of you out there

>started the bar this way?

>Now I can give a bath--it is exciting! I am sure I will now

>ask all the questions of the fun experiences all of you have had or

>having with your kiddies in the DBB bar...

>Krishna

>

>

>

>

>

[Guest guest]

Hi Krishna,

Congrats!! Another milestone met, it is so nice to be able to put em

in the tub!

ee gave you some great advise here, you need to set her brace at

70 degrees, I would do it tonight! As s. pointed out, it will not

bother her in the slightest if she is fully corrected.

is going to do countless, funny and incredible things in her

brace. It never ceases to amaze me how our daughter gets around in

hers.

When we first went into the FAB and went through the adjustment phase

(for us it lasted a couple of days) and I came on the board looking

for support, someone said something to me that I will never

forget... " it becomes their normal " . It is all she has ever known so

now it is just a part of our bedtime ritual, it is soo easy now!

Won't take you and long to get adjusted either. But you

really do need to put her at 70, why take any chances??

& Grace

> Krishna,

> Personally I would highly recommend you put your shoes at 70

degrees and leave them there! If she was corrected properly, she

came out of her last cast set at 70, so putting her in to 70 degrees

shoes would not be a new discomfort. However, if you are pulling

them in to 20 degrees, you are allowing her to lose correction,

allowing her bones/tendons/etc., to shrink up to that 50 rather than

remaining at the 70 they were at. If they shrink up to fit the 5 0

you won't get them back to 70 with out a painful fight and possibly

more casting again. I understand it's hard as a parent to look

at what appears to be un-natural, but practically every normal foot

is capable of moving out to 70 degrees adn it's not painful to the

child, yet it is critical to her long - term recovery! If at all

possible now, put your shoes back to 70 and keep them there.

Hopefully she has not lost correction and will have no problems.

> s.

> has graduated to the DBB

bar;0)

>

>

> HI Everyone-

> Sounds like I have missed some intereting posts. I wanted to share

> some exciting news with all of you. My daughter had her casts

taken

> off last Wednesday and went into the DBB bar! So it has only been

> four days and she has been a trooper so far. I know it is more

> frustrating for her to be in it because she can't move her feet

> independently than hurting them. I cried the first night she was

in

> them, but I realize this is the hardest part of the treatment!

> Question: I know you are suppose to have the bar at 70 degrees,

but I

> set it about 50-55 so she can be comfortable and plan on bumping it

up

> to 70. Is this bad to start with less degrees and bump it up? I

> asked my doctor and he said it was okay, I just don't want her to

> relapse since we did not get the tenetomy. Have any of you out

there

> started the bar this way?

> Now I can give a bath--it is exciting! I am sure I will

now

> ask all the questions of the fun experiences all of you have had or

> having with your kiddies in the DBB bar...

> Krishna

>

>

>

>

>

[Guest guest]

Well, I guess I should have read all the posts before replying too.

Good to hear that you are all set-up right now. If she is fine in the

FAB and not complaining too much, you are probably just fine. Just

make sure to do all the hours in the brace. It is really important

esp. now with her just coming out of casts. We are happy for you

guys, give a squeeze from us!

& Grace )

Glad I didn't post before

reading everything. I would have said the same think, so I just

wanted to second what ee said!

>

>

>

> has graduated to the DBB

bar;0)

>

>

> HI Everyone-

> Sounds like I have missed some intereting posts. I wanted to

share

> some exciting news with all of you. My daughter had her casts

taken

> off last Wednesday and went into the DBB bar! So it has only been

> four days and she has been a trooper so far. I know it is more

> frustrating for her to be in it because she can't move her feet

> independently than hurting them. I cried the first night she was

in

> them, but I realize this is the hardest part of the treatment!

> Question: I know you are suppose to have the bar at 70 degrees,

but I

> set it about 50-55 so she can be comfortable and plan on bumping it

up

> to 70. Is this bad to start with less degrees and bump it up? I

> asked my doctor and he said it was okay, I just don't want her to

> relapse since we did not get the tenetomy. Have any of you out

there

> started the bar this way?

> Now I can give a bath--it is exciting! I am sure I will

now

> ask all the questions of the fun experiences all of you have had

or

> having with your kiddies in the DBB bar...

> Krishna

>

>

>

>

>