Re: Re:Loriann

[Guest guest]

Darla,

Glad to hear that Asenath was able to get rehydrated. Hope this prevents further decline for her. It is so hard to figure out at times why they vomit and whether it is a GI flu bug or not. Glad to hear that she did not have to remain inpatient. Best of luck on your trip up to Mayo. LoriannDarla Klein wrote:

I mentioned the flu shot as the flu can also cause vomiting. I was just commenting that I didn't think the vomiting was due to the flu, but rather due to her cyclic vomiting. I did take her to the hospital as the on call geneticist told me she should be to prevent further decline. Thanks for the note. Hope all is going well with you and your family.See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.orgDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo &

hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency...Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Re: Vomiting/dehydration (When to go for IV fluids)> Darla,> The flu shot is not for GI issues. It just prevents the upper respiratory > viruses. Hopefully you were able to wait to bring her in and that things > are resolving. I know it is not easy to travel with a sick child. > Loriann>> Darla Klein wrote:>> If anyone could respond quickly on this I would appreciate it. Asenath> has been vomiting since about 6:30 AM quite a bit. She isn't holding> liquids down and has been sleeping all

day. Her face looks slimmer (this > is> major as steroids cause major swelling of the face!). We were scheduled to> go to Mayo tomorrow afternoon for overnight IV fluids for her MRI/MRA > which> is Monday, but now we are wondering if it might be smart to go tonight and> get the IV's going. I have Pedialite going in through her G-tube presently> but wonder if keeping her home is risky as she so easily has strokes. She> vomited one time for the past two days and had 4 liquidy bm's as well. I> know this isn't the flu as she had the flu shot about 2-3 weeks ago so I > am> worried it may be her cyclic vomiting getting worse. Any advice? For those> who deal with cyclic vomiting, how soon do you go in for IV fluids?>> See www.caringbridge.org/ia/mitomomof9 and this link to see a real look > into> Mito using a photo collage of my girls at www.heartbeatsformito.org> Darla:

mommy to> Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,> hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...> Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, > SID,> GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,> disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping> syndrome, iron deficiency...> Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & > Marquis (2) (some with Mito symptoms)>>>> Please contact mito-owner with any problems or questions.>