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She had seizure testing during the sleep study that diagnosed the restless

leg syndrome and there were no seen seizures so am assuming it's not

seizures.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Restless leg syndrome vs. muscle spasms- ?'s

>

>

> > Could this be dystonia?... My daughter has dystonia and restless leg

> > syndrome... we noticed when we put her on L-dopa that she sleeped better

> > at night... no more crying and no more waking at night...

> > Netty mom to Akasha (atypical Rett syndrome negative genetic testing

> > possible mito disorder)

> >

> > Darla Klein wrote:

> > To those who have experience with restless leg syndrome, have you

> > ever

> > noticed one side worse than the other and also, does your arm/hand also

> > jerk? Before we raised Asenath's Topamax almost two years ago, her

> > right

> > side only (arm and leg) would jerk every night, but not her left side.

> > NOW,

> > Zipporrah has been exhibiting the same symptoms (right side only, leg

> > and

> > arm both involved). She has been dealing with it for the past

> > approximate

> > 6

> > months. The docs were thinking low iron was the issue, but even with

> > iron

> > drops and her iron raised to 11 (finger poke-unsure about other levels

> > at

> > this point), she still is jerking just as bad as before. I have had the

> > same issue at the end of the day after relaxing in bed or on bad days

> > while

> > sitting that seem to be more of an issue of muscle spasms from

> > overexerted

> > muscles that are weak and am wondering if this may be more likely as

> > well.

> > Any opinions welcome on the subject. :)

> >

> >

> > See www.caringbridge.org/ia/mitomomof9 and this link to see a real look

> > into

> > Mito using a photo collage of my girls at www.heartbeatsformito.org

> > Darla: mommy to

> > Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

> > hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

> > Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction,

> > SID,

> > GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

> > disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

> > syndrome, iron deficiency...

> > Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

> > Marquis (2) (some with Mito symptoms)

> >

> >

> > Please contact mito-owner with any problems or

> > questions.

> >

> >

> >

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