Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 I am new to this group. I had surgery from Dr.Anthone at USC on 6-1-01. My brother had this same surgery a year before I did, and had major comlications. He was high risk, and was in ICU for 2 months. One thing I would like to let all of you know about so that the preops can ask their surgeon about is putting in an umbrella also known as a filter, for prevention of throwing a clot. The doctors at USC are doing this routinely now (thanks to learning from my brother) during WLS on patients they consider a risk. Ask your doctor what they think of this for you. It might buy you some peace of mind. My brother did survive and told me that he would do this surgery all over again, even with going through hell, to enjoy doing things that he couldn't do before (sitting in a booth, etc.) This comment is the reason I went through with this surgery, so that I could live my life and enjoy it instead of hiding away from the discrimination towards obese people. Thanks---Cindy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I agree as well, I would just delete the ones I am not intrested in reading. I have been doing this for over a year now as I just dont have time to read every one that comes in. Have a great weekend and blessings to everyone! Horsley Re: a suggestion I would have to agree with Deb. Just delete the ones that are not of interest to you. Kathy, grandma to Audrey,3 yearsVisibleWorship@... wrote: i wonder how everybody would feel, if we sent short notes of support to the individual's direct e mail, rather than the group and save posts to the group for advice and past expieriences with medical matters, this would save going through a lot of e mails every day how does everyone feel about this? I see where you are coming from but I think its important (especially for the newbies) to know the support is out there if they need it. I often delete posts...I usually read the first post and if its not a topic that interests me, I delete the responses...its easy and just takes a sec...so that would be my suggestion...but that's just my opinion... deb...mom to four great kids and wife to one amazing guy!www.LifeofLoveProject.orgwww.debwells.comPlease contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I would like to chime in here....I have zero time to really contribute to the topics but I want to say that I have received so much information that I can take back to my dr and it has helped me tremendously. I have 5 kids with mito and me too. currently we are in a crisis..although it seems like it has been 5 years of nothing but crisis. I honestly love the people here and the things shared, I know if I am in need for a cyber hug of support or have a question I need serious answers on, I can come here. I like to see the parents help each other with support. I see none locally. We have no support at all from family or from friends here in our area..our only support comes from reading emails and knowing each of u may be chatting amongst yourselves, but you are really telling everyone you care. If the pots were to be sent privately All I would see is information or grief, but nothing at all in support. I hope this stays this way....I agree, I delete some things or I hold off and read when I am quietly resting on the pc at night... there my 2 cents worth...now back to my crisis!!!!!!! Donna mito mom of 5, and myself... Re: a suggestion For some people, this may be their only place for support as family/friends may not understand what having a mito child is like. I pray for everyone who posts, but I do not have to read every response to their original post. If it is easier for you, you can just come to the board, rather than read the whole list in your email. Just my thoughts, but I think this is a more personal forum for the very reason that people post the trials and tribulations of life with mito.Beth> > > Suhad,> > My prayers are with Leanna and your whole family. I hope she is > feeling better and home safe and sound very soon, Dawn> > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 First of all are you on digest form or the regular where you get every piece of email. I'm on digest and some times I even get a lot of emails. But I read the first line or two as as Deb said, if it doesn't apply to my daughter, I delete it. But some times I read them all because I get some important information in case we would need it for future use. Plus when I see one email about an illness or such it reminds me to write a quick note. I speak of this group often and the support I get from every one and what I learn from you all. But you can still directly email some one if you want to save time. That would be ok with me. Nerenhausen mom to Leah > > > In a message dated 3/10/2005 6:07:17 P.M. Central Standard Time, > martin310370@... writes: > > > i wonder how everybody would feel, if we sent short notes of support to the > individual's direct e mail, rather than the group and save posts to the group > for advice and past expieriences with medical matters, this would save going > through a lot of e mails every day > > how does everyone feel about this? > > > > > I see where you are coming from but I think its important (especially for > the newbies) to know the support is out there if they need it. I often delete > posts...I usually read the first post and if its not a topic that interests > me, I delete the responses...its easy and just takes a sec...so that would be > my suggestion...but that's just my opinion... > > deb...mom to four great kids and wife to one amazing guy! > > _www.LifeofLoveProject.org_ (http://www.lifeofloveproject.org/) > _www.debwells.com_ (http://www.debwells.com/) > -- CoreComm Webmail. http://home.core.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Guess I am in agreement with the other women who have responded as I would hate to see any changes in the groups way of communicating with one another. I too love to see different people talking to each other and " listening in " to learn things I didn't know previously, be able to share my thoughts, support others, and receive support from others. When I am busier or the topic doesn't concern me much I will quickly glance through the message and delete and find I can go through 50 messages rather quickly. The ones I want to respond to I either do so right away or save for later when I get the chance. Because I believe in the importance of this group and the support it provides us all, I take the time most days to really be a part of it, but I know there are others that are very busy or just want to read rather than speak. Whatever helps the most... I think someone also said some other ways for you to be a part of it and you may want to try a few of the suggestions. You can go to the yahoo group site to read, receive in digest form, read only what interests you, or read it all glancing through things of lesser interest and zeroing in on the stuff that is important to you. Hope some of our comments will help you. I absolutely LOVE this group the way it is! See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) a suggestion > please do not shoot me! > > i wonder how everybody would feel, if we sent short notes of support to > the individual's direct e mail, rather than the group and save posts to > the group for advice and past expieriences with medical matters, this > would save going through a lot of e mails every day > > how does everyone feel about this? > > martin > > > thefourofus03 wrote: > > > Suhad, > > My prayers are with Leanna and your whole family. I hope she is > feeling better and home safe and sound very soon, Dawn > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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