Can't afford to see Shoffner... now what?

[Guest guest]

We had been scheduled to go to Atlanta to see Dr. Shoffner, but once

the insurance pre-cert was final we learned he is " out of network " and

will cost several thousand dollars for us to go through with the

biopsy there (which just isn't an option right now). Does anyone have

any advice? What are our other options? Who else does fresh

biopsies? We checked to see if Dr. Cohen was in-network and he is

not. Mayo is not in network. Anyone else left?

My son is 10 with suspected Mito(mild). He's doing a little better

with fatigue/strength since starting Coq10 and Carnitor. He also has

a severe immune disorder and is on IVIG (actually SCIG).

Thanks in advance for any advice!