Re: Dr's visit and exciting news

[Guest guest]

, that's great! Don't worry, the group will grow. Kind of like Costner's "Field of Dreams;" build it & they will come. Right?

Is there really a convention in Cincinnati, or did you mean Indianapolis? I'm not being a smart-aleck; I just know how easily I jumble things up. If there is one in Cincy, do you have info on it?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: topdat@...Date: Tue, 2 Oct 2007 21:59:56 -0500Subject: Dr's visit and exciting news

Some of you know that living here in Nashville.. I've not got the best of care, and at times I've gotten no care.. Soo, I'm proud to announce that Nashville now has a Sarcoidosis Support Group.. YAY!!! its out of Vanderbilt, where I go to the doctor.. awesome...Only problem is there is only two people other than myself where there, except for people from other areas of the state that are members of other chapters.. We attened the meeting on Saturday, and for the first time the doctors where talking the language that I understood.. with sarcoidosis..not blowing it off and as a matter a factly was rather shocked that anyone would..

Soo, I stayed and shared my experience with Vanderbilt Doctors....not good..except Vanderbilt is currently looking for me a PCP to replace prettypants, that I haven't seen since last December.. and at the support group, they announced that this Dr Wilker was starting up a Sarcoidosis Clinic.. I thought I had died, or fell asleep and was dreaming right there..As I said, she was talking in the terminology that I had researched and had been taught and that we all discuss.. Dr Baughman's name was brought up, I was like a lost dog finding its master.. lol Its only taken 6 years, and things are still in the works.. so can't get excited to much yet..

Now for those of you that are going to the Cincinati convention.. there is a lady named Jurleen that is coming.. please say hi to her.. she is from here and is one of the three of us Middle Tennessean's that were there.. I'm so excited.. I can't tell you all how much I am.. I was gonna tell you all about it.. then things kinda went sour on Saturday night..and I've not had the opportunity..

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[Guest guest]

Nooo Rose, I'm a goof.. its in Indy..new home of Peyton Manning.. I think.. lol

Dr's visit and exciting news

Some of you know that living here in Nashville.. I've not got the best of care, and at times I've gotten no care.. Soo, I'm proud to announce that Nashville now has a Sarcoidosis Support Group.. YAY!!! its out of Vanderbilt, where I go to the doctor.. awesome...Only problem is there is only two people other than myself where there, except for people from other areas of the state that are members of other chapters.. We attened the meeting on Saturday, and for the first time the doctors where talking the language that I understood.. with sarcoidosis..not blowing it off and as a matter a factly was rather shocked that anyone would..

Soo, I stayed and shared my experience with Vanderbilt Doctors....not good..except Vanderbilt is currently looking for me a PCP to replace prettypants, that I haven't seen since last December.. and at the support group, they announced that this Dr Wilker was starting up a Sarcoidosis Clinic.. I thought I had died, or fell asleep and was dreaming right there..As I said, she was talking in the terminology that I had researched and had been taught and that we all discuss.. Dr Baughman's name was brought up, I was like a lost dog finding its master.. lol Its only taken 6 years, and things are still in the works.. so can't get excited to much yet..

Now for those of you that are going to the Cincinati convention.. there is a lady named Jurleen that is coming.. please say hi to her.. she is from here and is one of the three of us Middle Tennessean's that were there.. I'm so excited.. I can't tell you all how much I am.. I was gonna tell you all about it.. then things kinda went sour on Saturday night..and I've not had the opportunity..

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[Guest guest]

That is great , its so good to have someone who can relate to what sarcoidosis really is and what we go thru -ESPECIALLY Medically trained people! I have been having the same issues with my PCP that you have experienced with prettypants. He just doesn't listen and want to bother with me and keeps saying he's going to get in touch with other drs. and/or acts like he's going to help me, but no follow thru. I should really look for a new one too, but its like "shooting craps" - all the work involved with switching over and you never who you are going to get - if they willl be responsive and attentive or not! I wish you luck with your new group and hope that progress will be made in the state of your health. Hugs, Debbie T. Co-Moderatortopdat@... wrote: Some of you know that living here in Nashville.. I've not got the best of care, and at times I've gotten no care.. Soo, I'm proud to announce that Nashville now has a Sarcoidosis Support Group.. YAY!!! its out of Vanderbilt, where I go to the doctor.. awesome...Only problem is there is only two people other than myself where there, except for people from other areas of the state that are members of other chapters.. We attened the meeting on Saturday, and for the first time the doctors where talking the language that I understood.. with sarcoidosis..not blowing it off and as a matter a factly was rather shocked that anyone would.. Soo, I stayed and shared my experience with Vanderbilt Doctors....not good..except Vanderbilt is currently looking for me a PCP to replace prettypants, that I

haven't seen since last December.. and at the support group, they announced that this Dr Wilker was starting up a Sarcoidosis Clinic.. I thought I had died, or fell asleep and was dreaming right there..As I said, she was talking in the terminology that I had researched and had been taught and that we all discuss.. Dr Baughman's name was brought up, I was like a lost dog finding its master.. lol Its only taken 6 years, and things are still in the works.. so can't get excited to much yet.. Now for those of you that are going to the Cincinati convention.. there is a lady named Jurleen that is coming.. please say hi to her.. she is from here and is one of the three of us Middle Tennessean's that were there.. I'm so excited.. I can't tell you all how much I am.. I was gonna tell you all about it.. then things kinda went sour on Saturday night..and I've not had the

opportunity..

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