Re: AFO's for intermittent use?

[Guest guest]

Brenna use's them for toe walking along with nighttime bi-valves. Her AFO's we only use when she goes out and are not used when we are home just because she usually doesn't wear shoe's. So, Brenna's use is different than what will be using them for. Hope someone else will be able to offer you some info.

Kerry

-----Original Message-----From: ilikemonstertrucks Sent: Friday, November 19, 2004 4:46 PMTo: Mito Subject: AFO's for intermittent use?s been referred for AFO's, which we were expecting. were really hoping they make a difference for him... my question though is that they wont be for full time use... he will only be wearign them when he crashes and has trouble with his legs and feet, this will probably be about 25% of the time... does anyone else use them intermittently, or are you all on a full time basis?thanks!KeelyPlease contact mito-owner with any problems or questions.

[Guest guest]

Hi Keely!

When Maddie first got her AFO's it was after a rough year and trouble with anesthesia after an MRI. At first they were used full time, but now she only wears them a couple times a week. (usually when she's been fatigued, or after /during an illness.) HTH!

Holly Rubio

AFO's for intermittent use?

s been referred for AFO's, which we were expecting. were really hoping they make a difference for him... my question though is that they wont be for full time use... he will only be wearign them when he crashes and has trouble with his legs and feet, this will probably be about 25% of the time... does anyone else use them intermittently, or are you all on a full time basis?thanks!KeelyPlease contact mito-owner with any problems or questions.

[Guest guest]

hello Keely, Well my daughter shay wears her AFO's only when she is down playin but we dont put them on her when we go out, so she doesnt wear hers that much either. it is usually up to the person fitting them for ur child or ur ot or pt. I hope that this will help u sonja RE: AFO's for intermittent use? Brenna use's them for toe walking along with nighttime bi-valves. Her AFO's we only use when she goes out and are not used when we are home just because she usually doesn't wear shoe's. So, Brenna's use is different than what will be using them for. Hope someone else will be able to offer you some info. Kerry -----Original Message-----From: ilikemonstertrucks Sent: Friday, November 19, 2004 4:46 PMTo: Mito Subject: AFO's for intermittent use?s been referred for AFO's, which we were expecting. were really hoping they make a difference for him... my question though is that they wont be for full time use... he will only be wearign them when he crashes and has trouble with his legs and feet, this will probably be about 25% of the time... does anyone else use them intermittently, or are you all on a full time basis?thanks!KeelyPlease contact mito-owner with any problems or questions Please contact mito-owner with any problems or questions.

[Guest guest]

Our , 6 1/2. now wears them after she gets home from school. She has

worn them during sleep and all day. Her use fluctates a lot, depending upon

pain.

[Guest guest]

Grace does not have AFO's exactly (but something similar.) Her doctor only said she really needed them when we would be walking more than normal, for example going to the mall or zoo. He thought they may annoy her due to sensory issues. We were wrong. Grace loves her's so much she puts them on herself, all the time. She does not talk alot, but when she is not wearing them she complains of "owies" on her feet and legs. We never hear that when she is wearing them. Best wishes.

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