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Connie, one thing that helped me more than the foam mattress, etc. was an air mattress, just partially inflated. If it's fully inflated, it's too firm. It needs to be squooshy (sp?). I also use a child's swim ring (88 cents at Walmart) to sit on. I keep one in my recliner & one in my car; these are also just partially inflated. I have hip pain, more on the "sitter" bones (not the tailbone, but those bones to the sides). I first bought one of the donuts from a medical supply store, I think it was $6 or more. The thing went flat within a month. So I tried the swim rings & those things last for months! You might not be able to find them now, but in the spring, buy several & keep them for future needs. You might even want to try one of those cheap float mattresses if you don't have a twin-size air mattress.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: conaugusta@...Date: Fri, 2 Nov 2007 20:54:45 -0700Subject: Re: Re: question

What do you guys do when lying down becomes anightmare. Somestimes even though I am so tired Ican't see straight, I stay up because if I lie downeverything goes haywire. The neuralgia will start myfeet & legs stinging like i'm in a fire ant bed andthe joint pain wakes me up off & on through the night.I've tried making the bed more comfortable, my mamacalls it the "nest". I have a box springs, regularmattress, foam pad, feather matress and a quilt on topof that (all on a twin bed)and the pressure still getsto be too much and different joints will wake me up. My trigeminal neuralgia is acting up and I'm back onLyrica, that has helped some, but my joints are nuts. Short of hanging from a limb like a possum, i'mrunning out of ideas.....besides I don't have thebackside for it, it's wide but it won't hook over atree limb.Connie --- <bbwtabbie (AT) yahoo (DOT) com> wrote:> > Terri,> > If you don't have a recliner you should really> invest in one. No, that> wouldn't be selfish of you at all...your comfort is> very important! I> had purchased mine a year and a half before I became> sick and I hardly> ever used it, but after the surgical biopsy on my> spinal cord it is the> only place I am truly comfortable. I take a 2 hour> nap each afternoon> also...so you are definitely not alone. I sleep> about 6-1/2 to 8 hours> a night and within several hours of getting out of> bed for the day I am> back asleep for several hours in my recliner. I> definitely have to divy> up my energy...just like Darlene said...store it up> if you know there is> something you have to do later in the day or the> next day.> > Hang in there!> > Hugs,> > in UT> > > > > It is funny you talk about riding your recliner - I> was thinking about> buying one for my husband as a suprise, but I> realized it I bought one> it would be for me. Pretty selfish huh?> > > __________________________________________________

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