Hydration issue (What do YOU do?)

[Guest guest]

We have been trying to regulate Asenath's feedings using the G-tube

throughout the day and night now rather than just doing tube feedings at

night time and trying desperately to get her to eat " something " during the

day only to see her basically starve all day. Since her last

hospitalization we have been noticing a tendancy for her to run low blood

pressures and other symptoms indicating dehydration. We have noticed

Pedialite added to her tube feedings help as well as pushing liquids during

the day BUT when I lower or stop the Pedialite, she gets more dehydrated

again. WHAT DO YOU GUYS REGULARLY ADD TO THE TUBE FEEDINGS TO KEEP YOUR

CHILD HYDRATED AND HOW MUCH? I like adding Pedialite, but it is so

expensive. Do any of you get it covered by insurance or medicaid???

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting,

preseverating tendancies...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)