Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Stacey Gaby verbalised as a baby, but started singing about 4 years of age (about 12 months into the keto diet) We really only " read " her whines and body language still for communication. We have tried pictures, signing and switches, non eof which have been terribly successful. After an appointment this week, we have decided to give speech/OT therapy another serious shot next year to try and develop a system of Communication as she has developed a habit of yellng for long periods, which may well be frustration form lack of communication. Gaby uses the sign for " finished' a lot. It means..I've had enough, ..lets go.. no more.. so perhaps we could work more on this. She has some dystonia,and CP which make small switch use difficult, but she can use a big switch, for example on her computer to listen to " Living books " I too, would just lke her to be able to tell me what she wants, or doesn't want from time to time. She looks into my eyes, and I can see that she wants to 'say' something..but then she just sings!! There is a little girl with PDH in the USA that we whose family we have communicated with in the past, and she does not speak at all (aged 7 years, and on the keto diet since an early age). There are also 2 girls here in Australia younger than Gaby (and not on the keto diet) who do not speak.(both are also blind, and one is deaf) ne, mum to Gaby, PDH, G Tube, keto diet, wheelchair dependant, CP,microcephaly, scoliosis, hip surgery and loves to sing! Quote Link to comment Share on other sites More sharing options...
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