A few thoughts

[Guest guest]

Hi Everyone!

I know it has been a while. We have been bouncing from Hopkins to

Childrens to town. Not to mention our regular visits to the

PCP.

SO far we are all hanging in there. Right now Abigail has a rash on

her cheeks (light pink) and it is spreading to the rest of her

body. Not sure what we are in for.

Her PCP noted a big decline in her muscle mass since last year at

her well baby visit. I was saddened by this as I am ever hoping that

we will make our way back to where we were before this roller

coaster began.

We have been encouraged to put Abigail into a gymnastics class.

Though today she could hardly make it through JC Penny's. Still

when we went to see the gym she didn't want to leave. I want her to

have this, I can tell my husband does to. Please don't think badly

of me when I say this...I am afraid to see her next to other 3 year

olds. I am afraid of seeing that she is different. See, I can

imagine that she isn't that far behind when I measure her against

her older sisters. After all they are older, or against the younger

children on our street...they are all still learning to walk and

talk.

None the less Monday we will be going to Little Gym, I will be

swallowing hard while she will be jumping in with both feet and not

looking back as she always does. Thank God she is brave as I can

only muster enough to put on a front, and then crumble after the

children are in bed each night.

When we went to the Little Gym this morning, Abigail said she needed

a body suit for her gym class. The lady instructor insisted that

sweats would be fine. Abigail was so excited she instantly told the

lady that she had pink sweats at home, and that they even had

bunnies on them. lol When we came home she pulled them out, and

declared that she was ready for her class.

I only pray that this is everything she wants it to be. Sometimes, I

see the pain when she can't keep up with other kids. I just really

want this to be special.

Thx for listening.

Myst