Ode to Stu

[Guest guest]

Hey, Stu, one of the things that makes this planet interesting is that we are all different. Look at the folks that make it to 100, smoking & drinking all the way. I didn't mean to pressure you in any way; this may be the only effective treatment for you. You may not have serious pred complications, or if you do, like you say, that's the trade-off you've chosen. I just wanted to stress that if you ever do try to taper down, don't let them do it in such big leaps. With any luck, this is the last you'll hear from me on this subject! Don't worry, I'll find other stuff to yammer about!

A limerick.

There once was a fellow named Stu,

Who thought he'd try something new.

Tho' many had dread,

Stu demanded the Pred!

For to his own self he was true!

Ramblin' Rose

Moderator

A merry heart is good medicine. Proverbs 17:22

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: I wondered if anyone else feels the same?Date: Wed, 29 Aug 2007 22:44:14 -0000

Ill tell you guys, I get frustrated with the pred sometimes because Iknow it isnt good for us, and i know the docs are always telling us toget off it, but Ive been on it for over 12 years now, and nothing isgoing to convince me that we are EVER going to find anytnhing that isgoing to completely replace it no matter what they do. Besindes, atthis poinnt, I think i might just miss is, its been in my ritual forso long now I dont know if Id know what to do without it!Stu Ive had this running thing with my neuro, he is trying really hard to> get me off the steriods, and I understand why, they are terrible, but> nothing else is keeping me going so I am unwilling to stop using them> untill somthin g wlse comes along that works. Recently he moved my> weekly infusion of 1/2 gram solumedrol to every three weeks to see> what woud happen. Much as I thogt it didnt work too well and I got> reall bad raelly quicly. By yesterday, I was just about unable to> move, I made it to work but by 10 am things were getting worse by the> mometn, my mind was getting fuzzy, my gait was so far off I was having> trouble walking even small distances, I was very weak trembling all> the time, vision was dark and fuzzy speak was shaky and I was biting> my tongue which already hurt repeatedly, my face was starting to droop> and I felt panicky like I do when my mind starts to go out of whack,> so Lizzy called the Neuros office and they had me in there by 11 and a> needle in my hand by 1130, by noon we were watching as the bag was> pumping steriods into me and this morning although Im still shaky and> sweating alot, my mind is clearere and I feel much better. ThankGod!!!> > I know the steriods are slowly destroying my body, but at least for> now I need them and dont give a damn about the consequenses!!!!!! > Maybe I regret that later, but for now………..Screw it! Am I alone,> doesnt it seem worth it to pau the price later for some king of life> now? My docs dont agree althoujg they are letting me kall the shots> for the most part, until they looes their minds and insist we try> things that nearly kill me llike this, but I dont think thy get it at> all. Lizzy I think understands why I wont quit using the steriods> until thye have this under control a whol.e lot better, but nobody> else seeems to and Im starting to feels a bit embattled., not that i> unused to fighting battles Im just a bit tireed at the momment. lol> > /so I wondered what you folks thnk, since Im sure youve probably> facedd the same kinds of dilemas during your fights. Mostly out of> curoisity.> > God bless, and sorry about the typing, just dont have the energy to go> back and fizs it.> > Stu> > > > > > > ---------------------------------> Choose the right car based on your needs. Check out Yahoo! Autosnew Car Finder tool.>

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