Re: Deb- Is early puberty common with Mito? and body odor

[Guest guest]

Just wondering what the other two ages most common were and if you saw any

similarities as to why with those ages.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

Re: Is early puberty common with Mito? and body odor

>

>

> In a message dated 1/12/2005 8:01:25 A.M. Central Standard Time,

> kilbridek@... writes:

>

> Kirkland is almost four and he has B.O. I don't know why he has it so

> young. I assumed it could be from allthe meds he's on.

>

>

> I'm not sure its the meds... started with it at age three...at four

> we

> started putting deoderant on him and if we forgot his Kindergarten

> teacher

> would send a note home saying she couldn't work with him smelling like

> that!

> But he wasn't even sick until age 5.5, that we knew of so we wasn't on

> meds

> until he was almost 6.

>

> We only visited an endocronologist one time and he was the most idiotic dr

> we ever saw...didn't have a clue about anything I was trying to ask

> him...and

> I actually thought was going to punch him... got between the

> two

> of us to 'protect' me b/c even though he didn't understand what the dr

> was

> saying, he understood that he was not being nice to me. ah memories!

>

> was growing the beginnings of hair in his pits too...the neuro (who

> was our lead doc in Memphis...Korson was our mito doc) just couldn't

> figure out

> all that stuff...would be interesting to have a drs take on it. Its

> especially interesting b/c on the MitoAngels list we have noticed three

> different

> ages that many of our kids seem to be when they have passed away. ONe of

> them

> being age 10ish...which is the beginning of puberty for the girls

> especially...which has made us wonder (and discuss) the effects of

> puberty on a mito

> body.

>

> deb...mom to three great kids and wife to one amazing guy!

>

> _www.LifeofLoveProject.org_ (http://www.lifeofloveproject.org/)

> _www.debwells.com_ (http://www.debwells.com/)

>