Has anyone experienced this?

October 19, 2007

Hi everyone. It was very nice meeting some of you at the Indy

Conference. Rose, you were very sweet and gave us a ton of info.

We have another question though.

As some of you might know, has been off of his Cellcept for the

past three - four weeks because of the insurance company. We were

finally able to get it from the pharmaceutical company this week and

he has started retaking it. However, in the last couple of weeks,

he has started to get some symptoms again and I am a little

worried.

His arm pain is getting worse even though he is on Lyrica and other

meds for nerve pain.

Also, he has started having a band like sensation across his chest

and stomach. After researching it a little bit, I found out that it

is called " the ms hug " in some circles. Supposedly, MS patients

sometimes get the sensation when a new lesion appears on the spinal

cord. Does anyone here ever get that sensation?

Lastly, he went to the doctor today for some pain, sometimes sharp,

he was having in his chest. The doctor believes that he has

pleurisy and has ordered a chest xray. Has anyone ever heard of

this? It appears to be a viral inflammation of the wall between the

lungs and the ribcage. I hope that it is that and not that the

sarcoid is appearing in the lungs.

One last thing, his neuro now wants him to work himself up to 2000mg

of cellcept a day when before he was taking 1000mg. I am waiting

for a response as to why he wants him to essentially double up. Is

it just me or is that a big increase in dosage?

We have an appt with Dr. Baughman next month so maybe he can also

help with all of these questions that we are having. Thanks for all

of your help.

Ebony and

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