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cardiac/neurosarcoid

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well after the last three weeks in and out of the hospital fro severe

cardiac problems, i'm out. first my bp went up to 196/158 and they

could not get it down. after 4 days in the hospital i got out and the

next morning i took my meds which was new the coreg, and fell back to

the hospital, thank god for my wife and daughter, theycalled rescue.

they could not find a pulse or bp, the er nurse told me after that my

feet were modeled(first signs of death). wellafter a few more episodes

of heart problems, they did a angiogram, catheter in groin up to the

heart and of course found nothing, all was normal. this included

severe shortness of breath, chest pain, rapid heart beat around 190.

finally, hopefully my biopsies of two muscles and the sural nerve for

vasculitis is scheduled at usc on monday. three cuts in my better leg

does not thrill me, but they think more than sure that this will

definitely diagnose the neurosarcoid systemic and neuromuscular

sarcoid. i was first diagnosed by lymphnode biopsy in april, yet having

these severe problems for over 7 years. and hope to start on some

treatment of prednisone or immunosuppresent drugs to help slow this

down.

hope everyone is well, keep going and have faith!!!!\

ken

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