Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Zipporrah has been taking iron for the past 5-6 months (even though Dr. Whiteman knows it can be a Mito toxin he recommended her taking it) and her levels have some up very slowly to the low normal level. Her hemoglobin is 12.3, iron 168, transferrin normal but don't have the number, and the feritin is still only 12. Due to the fact that she constantly is fighting viruses and isn't raising much quicker they ran some IGA, IGM, and IGG levels. They said they are ok at present but in the low range so we may need to run some immune system labs to see if she is dealing with issues there. Her IGA is 38, her IGG is 488 (reference 400-1200), and her IGM is 49 (reference 35-242). They said she definitely is on the lower end and needs to be watched since she has been on iron so long with little change. ??? To those who deal with these issues, what age did the issues show for you and what were the levels your doctors began to worry and treat with IVIG or other means? The doc did say the reference goes from infants up to kids around 12 years of age so it is normal to be on the lower end, but yet they said she is lower than they expected and desire her to be since being on the iron supplement for so long. Any help here is appreciated. Anything I should be looking for??? See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Quote Link to comment Share on other sites More sharing options...
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