Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Stu, There are so many articles in the ARCHIVES AND LINKS SECTION. You can go to this part of the group site and access many of them by putting in the "topic" or "subject" ie. search SSDI-- and you will get a bunch of hits where we've talked about this subject. Here also is a site that covers a lot of body systems with sarcoidosis. This is part of the FSR site. http://www.stopsarcoidosis.org/sarcoidosis/symptoms.htm This is a second site that was quite interesting. http://www.nature.com/sc/journal/v44/n1/full/3101782a.html I used "spinal sarcoidosis" as my search terms. Hope this helps, Tracie NS Co-owner/moderatorGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Stu I have it on my spine also if the lady would like to talk to another patient in the same ugly boat you can give her my email address or if not just tell her that that is why they want to keep me on the Cytoxan for over 2 years now. I have no medical advice only my version of the crappy sarc story. Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 > > : It sounds like this poor lady is half scared out of her wits and someone who has the same condition would probably be exactly what whe she needs to talk with so yes if its ok with you I would love to give her your email and have her contact you for support. and thank you, I have been so $ & % & * sick the last couple of days Im havin a hard time getting tings done so I appreciqate your help. Im going to also give her the address of the group hopfully she will be abel to navigate to the information tonight in not I think I should be up and moving by tomorrow as I got an infustion this afternoon and feel a bit better allready, but have got to get some sleep before I fall over. Thansk again for your help God Bless, Stu Stu > I have it on my spine also if the lady would like to talk to another patient in the same ugly boat you can give her my email address or if not just tell her that that is why they want to keep me on the Cytoxan for over 2 years now. I have no medical advice only my version of the crappy sarc story. > > > > Join our Sock Challenge for Orphans in Kazakhstan - 265 pairs needed by 9/15/07 > http://groups. yahoo.com/ group/Mittens_ for_Akkol/ > > > grannylunatic@... > > --------------------------------- > Need a vacation? Get great deals to amazing places on Yahoo! Travel. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.