Guest guest Posted August 19, 2007 Report Share Posted August 19, 2007 The last couple of weeks have been miserable for me. Neurosarc has really been acting up.. I'm going through some difficult times mentally. Maybe if some of you could fill me in on what to expect I would be not so apprehensive. Has anyone gone to their appointment with him by plane.? About how far is it to his office from the airport? They mentioned that they had a deal with one the Marriot Hotel, which one is it that you stay in? How far is it from the hotel to his office? Our tickets are standby tickets and my son wants to go the day before our appointments whenever they are. What kind of person is he, very professional? Friendly? I am just scared stiff to go there, I guess it is just fear of the unknown. How much time does he spend with you? Is his staff friendly? Does he do tests while you are there or have you have you get them done when you go home. I guess if you could give me some answers to the things I asked and what I didn't ask I wouldn't be such a basket case. I have not been doing well lately, ++pain all over, headaches, having numbness in my left little finger. Feels like it was injected with novocaine. I can move it just can't feel anything. I also have this feeling of not being in my comfort zone. I am just sick and tired of this & ((* & & )) disease. I have had it since 1971 and I want to yell stop the ferris wheel I want to get off. My husband has been more than kind to me during this time. I have told him a million times how appreciative I am and that I am doing everything I can think of to handle all this. I have always been the type A person who can handle 6 things at once. Right now I can't even handle one thing at a time. How do you get to his office, hotel and airport, is there any public transportation. Since there are three of us it might be better to rent a car? I am so confused and scared. Right now I HATE THIS DAMN DISEASE!!!!!! I keep telling myself how lucky we are to have this support group and know how much we really care and understand what a person is going through and are there for each other when we feel like we just can't go another step. Bob keeps reminding me that I am dealing with the neurosarcoidosis and the mess that the MRSA left my body in.He worked on mmy left quad last night, my knee cap felt like it was matted down with more scare tissue. What he did helped quite a bit. Thanks for letting me let it all out. Judy in PA Quote Link to comment Share on other sites More sharing options...
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