Dr. Baughman

[Guest guest]

I am sincerely disappointed, there still has been no response to my

emails and calls since his nurse called and told me that they had

received all our records and would be getting back to me very shortly

as soon as he went over our records. She said he would decide when

the appointaments would be in one, two or Three weeks.

This week I started calling their office, yesterday when I called

their office the mail box was full so you couldn't leave a message. I

waited today and called back when we got home. The messages had been

taken off the machine, and still no call or email.

I'm very disappointed, you have all had such high praise regarding

him and his staff. My son is beside himself, and quite rightly can't

understand why there is nn response to his need for initial treatment.

Think of it like this if you were have a very big problem and he

ignored youra emails and calls how would you feel?

I am really in need of treatment, I have made every excuse why they

have not called but I just don't seem to be able to even do that any

more.

This is really playing havoc with my brain, the stress of waiting and

waiting has started more neuro symptoms. Sometimes double vision,and

more.

You have all been treated so well by Dr Baughman and his nurse, it

just does not seem fair. I need help and I don't know where to turn.

I am embarrased to tell my internest what is happening after I told

him how wonderful Dr. Baughman was.

I've done everything right, I should not be treated like this is

something none of you understand as he has been so wonderful to you.

Only good news is that my bone marrow is starting to produce red

blood cells, my Hemoglobin was 13.2 today the lab people cheered and

said I had come a long way from a hemoglobin of 8.

I have to go back next week and have ferritin and somemore blood

studies done to make sure my Hwwmoblobin is staying up.

Bob is teasing me saying it was the brier rabbit molasis that I put

in some sugar free zuchinni bread, I used some stevia and it tastes

great.

There is no one here who has ever had a neurosarc patient as

seriously ill as I am. They just told me that straight out.

I'm worried about Joe, he does not need the stress of waiting for a

call or email that never comes even after almost a month.

So who has gone to s Hopkins, and who do you see there? Any info

at this point would be appreciated.

Joe just called again as he does each day, I told him I would look

into s Hopkins. Baughman has just been so close to everyone in

this group I can't believe that I have done everything they asked me

to do immediately no matter how bad I felt. It really hurts when one

is treated like this by a physician that hardly knows you.

Thank goodness that I have the memory of three different doctors tell

me I was the best and nicest patient they had ever had in spite of

all that I was going through and that they would always be there for

me.

I hurt, I'm tired and I think I'll go to bed and have a good cry.

I really want to go to the Indy Conference but if I had so spend the

whole day with him I don't know if I would be able to contain myself

and as why I was treated so rudely by someone who is suppose to be so

nice.

Judy in PA

Judy in PA.