need some informaiton please

August 23, 2007

Hey folks:

As I was telling Rose a few days ago, before my doc in his infinite

wisdom decided that solumed infusions which keep me goig are evil and

should be stopped so that I can no longr functin so that i am back to

shakin and stumbling and all that fun stujff again, I have been

wofking on a blog about my experices with neurosarc as much for myself

as for my wife and kids so they have a better insight into what I have

gone through as I become less able to express it, something that is

happening all the time. but another part of this thing has been the

hope that others might stumble onto it and find something that helped

them as they go through their own battle as well, and it seems to be

turning out that way already even though it is only one month old, and

hasnt had much written in it as yet. I have made contact with

seveeral people who are isolated and havent felt conforta ble with the

usual boards like ours, and now I have a lady who needs help with a

medical issue that I hope youcan give me some guidance on. Naturally

I know better than to give med adivece, but she seems to need advice

on doctors as well as general advice on sarcoid lesions on the spinal

cord. I was hopeful you would have some good articles and some

insight on good docs, naturally I would suggest Mayo since she is in

Minn., below is the message she sent, edited to hide some more

personel info she sent as well. also is a link to the blog if you are

interested. thanks for any help you cna offer.

God Bles

Stu

# On August 23, 2007 at 11:48 am leevan Said: |Edit This

I just need to find out more about sarcidosis I have on my spinal cord

and the doctors I talk have no ideal how this happen can you call me

or send me something on who I can call home num

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