Namenda

[Guest guest]

In a message dated 9/15/2006 1:18:26 P.M. Eastern Standard Time,

mark.connolly.cgb5@... writes:

Anyone try this on their ASD child?

I tried it for a short period. It appeared that we saw an immediate

improvement in some sounds, it did wear off and we did not keep it up. I still

may

try it again, not sure. I have heard mixed reports.

Works for some and not others, like most all of what we are doing.

It is all trial and error.

[Guest guest]

didnt do anything for my tough nut and he was a true candidate (excess

glutamate, etc.)

vicki

DJvirtual@... wrote:

In a message dated 9/15/2006 1:18:26 P.M. Eastern Standard Time,

mark.connolly.cgb5@... writes:

Anyone try this on their ASD child?

I tried it for a short period. It appeared that we saw an immediate

improvement in some sounds, it did wear off and we did not keep it up. I still

may

try it again, not sure. I have heard mixed reports.

Works for some and not others, like most all of what we are doing.

It is all trial and error.

[Guest guest]

I recently joined a local online group for parents of children with apraxia.

I'm not seeing anyone talk about the use of fish oil or vitamin e, but I AM

seeing many people reference a drug called Namenda. It sounds like a drug

that's commonly used to treat the elderly with Alzheimers, but many parents are

administering it to their apraxic kids. Does anyone know anything about this

medication?

Thanks

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[Guest guest]

I do not know the drug but I have learned this much via research and

discussion with mainstream docs. Alzheimer's, according to the doc I

spoke to, is a postmortum diagnoses. What that transates to is that

it, like autism and apraxia, could be a clinical label that applies

to many underlying causes. This is why some DAN's handle things like

autism, apraxia, ms, etc. An MS patient and an Alzheimer's patient

may benefit from the same or similar gut repair, liver repair, viral

and bacterial repair protocols that a neurologically inpaired kid

can. Still, if it were me, I'd look at allergen in a kid first, then

vitamin and mineral assurance. Were I to pursue a prescription

solution after that it'd be through a compounding pharmacy to be sure

aluminum, gluten and God knows what else, would not exacerbate the

very issues I was trying to resolve. Hopewell Pharmacy has a website,

takes insurance, and I believe they can do things via mail but am

uncertain about that last part.

Just my 2 cents.

The theory behind fish oil and vitamin E seems to be that the fish

oil keeps the toxins in the blood and away from the brain (blood

brain barrier) and the E can do many things like resolve a deficiency

and general antioxidant stuff. E may do more but I am not sure anyone

knows the extent of its value and applicability thus the need for

study. I hope I explained the above correctly and if not please,

someone better schooled jump right in. While we were nonresponders

and then inconsistent responders and have allergen issues with the

brands most used, there are reasons to look into it. Still, with the

E, which we were responders to, the most prudent thing, again jmo,

would be to get the coagulation testing first and monitor it for

bleeding stuff. This may be unpopular to say but here goes:

Fish oil and E are great and many children have benefitted. Fish oil,

in my opinion is likely the safest way to get the good stuff of fish

without the bad. E is great as well but there are more questions that

we as parents should ask if our kids need it. Questions I think

can address if anyone ever helps her get the study. If a kid

needs E, only a little, is it simply missing from diet or getting

malabsorbed due to an unaddressed allergen? If they need a lot and

ever increasing amounts are they a mito kid or do they have some

other unaddressed issue and may grow into bigger problems if the

parents stop at fish oil and E? Does the fish oil mask or help

allergies? Also, is there an E transport issue, an underlying gut

issue, etc. I did not just want to solve the problem for now. I was

greedy and wanted to know if I had a shot at preventing or reducing

collateral damage. I am greedy that way for my kids because I had

gut, yeast, and nervous system stuff that went on for years despite

the best mainstream care available, allegedly. It has only been

reduced and mostly resolved by the methods used to help my children.

Again, just my opinion and the reason why, tough as it was, I

addressed diet and genetics first and I am damn glad I did as it

benefitted more than my son.

>

>

> I recently joined a local online group for parents of children with

apraxia. I'm not seeing anyone talk about the use of fish oil or

vitamin e, but I AM seeing many people reference a drug called

Namenda. It sounds like a drug that's commonly used to treat the

elderly with Alzheimers, but many parents are administering it to

their apraxic kids. Does anyone know anything about this

medication?

>

> Thanks

>

>

> _________________________________________________________________

> Get the power of Windows + Web with the new Windows Live.

> http://www.windowslive.com?

ocid=TXT_TAGHM_Wave2_powerofwindows_012008

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>

[Guest guest]

I agree. I'm definitely in favor of resolving issues rather than masking them

with drugs. On this particluar site, there seem to be many people talking about

and using this drug. It seems that some phyicians in my area are referring to

it as the " apraxia " drug.....according to these parents. I was just curious if

anyone had any experiences such as this. If it is a local trend to take meds

rather than address underlying issues, than that's pretty

frightening.......especially when the patients are 2 and 3 years old.

@...: lizlaw@...: Sun, 6

Jan 2008 19:24:20 +0000Subject: [ ] Re: Namenda

I do not know the drug but I have learned this much via research and discussion

with mainstream docs. Alzheimer's, according to the doc I spoke to, is a

postmortum diagnoses. What that transates to is that it, like autism and

apraxia, could be a clinical label that applies to many underlying causes. This

is why some DAN's handle things like autism, apraxia, ms, etc. An MS patient and

an Alzheimer's patient may benefit from the same or similar gut repair, liver

repair, viral and bacterial repair protocols that a neurologically inpaired kid

can. Still, if it were me, I'd look at allergen in a kid first, then vitamin and

mineral assurance. Were I to pursue a prescription solution after that it'd be

through a compounding pharmacy to be sure aluminum, gluten and God knows what

else, would not exacerbate the very issues I was trying to resolve. Hopewell

Pharmacy has a website, takes insurance, and I believe they can do things via

mail but am uncertain about that last part. Just my 2 cents.The theory behind

fish oil and vitamin E seems to be that the fish oil keeps the toxins in the

blood and away from the brain (blood brain barrier) and the E can do many things

like resolve a deficiency and general antioxidant stuff. E may do more but I am

not sure anyone knows the extent of its value and applicability thus the need

for study. I hope I explained the above correctly and if not please, someone

better schooled jump right in. While we were nonresponders and then inconsistent

responders and have allergen issues with the brands most used, there are reasons

to look into it. Still, with the E, which we were responders to, the most

prudent thing, again jmo, would be to get the coagulation testing first and

monitor it for bleeding stuff. This may be unpopular to say but here goes:Fish

oil and E are great and many children have benefitted. Fish oil, in my opinion

is likely the safest way to get the good stuff of fish without the bad. E is

great as well but there are more questions that we as parents should ask if our

kids need it. Questions I think can address if anyone ever helps her get

the study. If a kid needs E, only a little, is it simply missing from diet or

getting malabsorbed due to an unaddressed allergen? If they need a lot and ever

increasing amounts are they a mito kid or do they have some other unaddressed

issue and may grow into bigger problems if the parents stop at fish oil and E?

Does the fish oil mask or help allergies? Also, is there an E transport issue,

an underlying gut issue, etc. I did not just want to solve the problem for now.

I was greedy and wanted to know if I had a shot at preventing or reducing

collateral damage. I am greedy that way for my kids because I had gut, yeast,

and nervous system stuff that went on for years despite the best mainstream care

available, allegedly. It has only been reduced and mostly resolved by the

methods used to help my children.Again, just my opinion and the reason why,

tough as it was, I addressed diet and genetics first and I am damn glad I did as

it benefitted more than my son.>> > I recently joined a local online group

for parents of children with apraxia. I'm not seeing anyone talk about the use

of fish oil or vitamin e, but I AM seeing many people reference a drug called

Namenda. It sounds like a drug that's commonly used to treat the elderly with

Alzheimers, but many parents are administering it to their apraxic kids. Does

anyone know anything about this medication? > > Thanks> > >

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[Guest guest]

Local or not docs are most comfortable with what is studied and

prescription stuff is. The problem is these drugs are rarely studied

on kids for obvious reasons and doses and long-term effects are

guesses. Also, parents are so often more receptive to a pill fix than

one that involves lifestyle change. Just the way it is.

You will definitely find your answer . Just go with your gut.

As Colleen says, there is a good reason you are his mommy!

>> > I recently joined a local online group for parents of

children with apraxia. I'm not seeing anyone talk about the use of

fish oil or vitamin e, but I AM seeing many people reference a drug

called Namenda. It sounds like a drug that's commonly used to treat

the elderly with Alzheimers, but many parents are administering it to

their apraxic kids. Does anyone know anything about this medication?

> > Thanks> > >

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