Re: please pray for my baby

March 6, 2005

How old is your daughter? Hailee when she has lots of seizures will sleep for days at a time, our neuro told us it was normal, also along with the fact that she is getting meds to stop the seizures that will also make her very very tired...

lots of prayers your way.... we hate seizures in our house, so i know how you feel

and hailee

March 6, 2005

I hope you find some answers... bug your neuro....

March 6, 2005

She is 3. I know in the past when she has had a grand mal she will sleep for

a couple of days, but she has been sleepy before the seizure. Adeline has

myoclonic seizures daily, but they have never affected her sleep.

H Payton

March 6, 2005

praying for you!

Donna

(mom to 5 with mito and myself as well)

please pray for my baby

Adeline is having some problems, which unfortunatly don't have any answersto them. She has been sleeping 18-20 hours per day for the last week, shenormally sleeps 12-14. She is not running a fever, she is not sick in anyway. She has a had a few more seizures than normal, but today she hadanother huge grand mal seizure, we went to the ER and they drugged (Atavanand Phenobarb) her up and sent us home. I have always felt okay taking herhome, but not today. She was still seizing some when we left, I just havethis horrible feeling something worse is about to happen. Please pray thatAdeline gets better, with whatever is bothering her. Thank you!Heidi PaytonPlease contact mito-owner with any problems or questions.

March 6, 2005

I'm praying for little Adeline.

e

-- please pray for my baby

Adeline is having some problems, which unfortunatly don't have any answers

to them. She has been sleeping 18-20 hours per day for the last week, she

normally sleeps 12-14. She is not running a fever, she is not sick in any

way. She has a had a few more seizures than normal, but today she had

another huge grand mal seizure, we went to the ER and they drugged (Atavan

and Phenobarb) her up and sent us home. I have always felt okay taking her

home, but not today. She was still seizing some when we left, I just have

this horrible feeling something worse is about to happen. Please pray that

Adeline gets better, with whatever is bothering her. Thank you!

Heidi Payton

March 6, 2005

i will keep your daughter in my thoughts and prayers.

bethany

mom to brennan 8, palmer & anna grace (leighs) 5

> Adeline is having some problems, which unfortunatly don't have any

answers

> to them. She has been sleeping 18-20 hours per day for the last

week, she

> normally sleeps 12-14. She is not running a fever, she is not sick

in any

> way. She has a had a few more seizures than normal, but today she

had

> another huge grand mal seizure, we went to the ER and they drugged

(Atavan

> and Phenobarb) her up and sent us home. I have always felt okay

taking her

> home, but not today. She was still seizing some when we left, I

just have

> this horrible feeling something worse is about to happen. Please

pray that

> Adeline gets better, with whatever is bothering her. Thank you!

>

> Heidi Payton

March 6, 2005

Lots of prayers and ((((((((((HUGS))))))))))coming your way

God BlessDan and Heidi Payton wrote:

Adeline is having some problems, which unfortunatly don't have any answersto them. She has been sleeping 18-20 hours per day for the last week, shenormally sleeps 12-14. She is not running a fever, she is not sick in anyway. She has a had a few more seizures than normal, but today she hadanother huge grand mal seizure, we went to the ER and they drugged (Atavanand Phenobarb) her up and sent us home. I have always felt okay taking herhome, but not today. She was still seizing some when we left, I just havethis horrible feeling something worse is about to happen. Please pray thatAdeline gets better, with whatever is bothering her. Thank you!Heidi PaytonPlease contact mito-owner with any problems or questions. __________________________________________________

March 6, 2005

Sending prayers your way, Heidi.

Kim- Mom to and Lindsey

please pray for my baby

Adeline is having some problems, which unfortunatly don't have any answersto them. She has been sleeping 18-20 hours per day for the last week, shenormally sleeps 12-14. She is not running a fever, she is not sick in anyway. She has a had a few more seizures than normal, but today she hadanother huge grand mal seizure, we went to the ER and they drugged (Atavanand Phenobarb) her up and sent us home. I have always felt okay taking herhome, but not today. She was still seizing some when we left, I just havethis horrible feeling something worse is about to happen. Please pray thatAdeline gets better, with whatever is bothering her. Thank you!Heidi PaytonPlease contact mito-owner with any problems or questions.

March 6, 2005

We are praying for Adeline. Maybe her neuro can give some ideas.

Hope the seizures stop soon and she gets back to normal.

Lois

> [Original Message]

>

> To: <Mito >

> Date: 3/6/2005 7:29:26 PM

> Subject: please pray for my baby

>

> Adeline is having some problems, which unfortunatly don't have any answers

> to them. She has been sleeping 18-20 hours per day for the last week, she

> normally sleeps 12-14. She is not running a fever, she is not sick in any

> way. She has a had a few more seizures than normal, but today she had

> another huge grand mal seizure, we went to the ER and they drugged (Atavan

> and Phenobarb) her up and sent us home. I have always felt okay taking her

> home, but not today. She was still seizing some when we left, I just have

> this horrible feeling something worse is about to happen. Please pray that

> Adeline gets better, with whatever is bothering her. Thank you!

>

> Heidi Payton

>

> Please contact mito-owner with any problems or questions.

>

March 7, 2005

Our hearts and prayers go out ot you.

and

March 7, 2005

In the absence of a fatty oxidation disorder has anyone tried adding

fish oil to the diet.

This may hit you all as strange but the Omega-3 oils in fish oils do

reduce inflammation in the brain. They are taken there by the Acetyl

L-Carnitine that the body makes by upgrading the Carnitor or L-

Carnitine produced by the body.

There is a lot of medical research which reveals a reduction in

inflammation type brain disorders on

www.pubmed.com the National Institute of Health website with the

use of fish oil or PUFA's polyunsaturated fatty acids.

Ground flax seed can also be used. It is 55% Omega-3 oils but it also

contains about 50 plant lignans that control inflammation in the body.

I have used it for 4 years to control inflammation.

> Adeline is having some problems, which unfortunatly don't have any

answers

> to them. She has been sleeping 18-20 hours per day for the last

week, she

> normally sleeps 12-14. She is not running a fever, she is not sick

in any

> way. She has a had a few more seizures than normal, but today she

had

> another huge grand mal seizure, we went to the ER and they drugged

(Atavan

> and Phenobarb) her up and sent us home. I have always felt okay

taking her

> home, but not today. She was still seizing some when we left, I

just have

> this horrible feeling something worse is about to happen. Please

pray that

> Adeline gets better, with whatever is bothering her. Thank you!

>

> Heidi Payton

March 7, 2005

We will definitely pray Heidi, I think it's so hard when you don't have answers but you know intuitively that something is really wrong. Please keep us informed, we are all here support.

JoniDan and Heidi Payton wrote:

Adeline is having some problems, which unfortunatly don't have any answersto them. She has been sleeping 18-20 hours per day for the last week, shenormally sleeps 12-14. She is not running a fever, she is not sick in anyway. She has a had a few more seizures than normal, but today she hadanother huge grand mal seizure, we went to the ER and they drugged (Atavanand Phenobarb) her up and sent us home. I have always felt okay taking herhome, but not today. She was still seizing some when we left, I just havethis horrible feeling something worse is about to happen. Please pray thatAdeline gets better, with whatever is bothering her. Thank you!Heidi PaytonPlease contact mito-owner with any problems or questions. __________________________________________________

March 7, 2005

I am heartbroken to know she is ill. I can always picture her in my

mind since meeting you guys and know this must be hard for you to see her

struggling. We will be praying for her to start improving and not to

continue having the seizures.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)