Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 I am looking for people in the Miami, Fl. area to form a support group locally as the only support group in our state is in Melborne, Fl. I am in hopes of increasing public awareness as to the needs of children and adults with this disorder. As I told you before, my grandaughter, who lives in Atlanta was to have a muscle biopsy, results are back and as her Mommy has told you, she has Complex I and Complex IV. Until we became faced with her disorder, this was something that I had never heard of, but now that I am in the know, I can't turn my back on an opportunity to make other people aware, including the medical profession. I spoke with Melinda O'Toole a little while ago from UMDF and she suggested I send this message, as she too, has no immediate contacts in Miami, Fl. So, please, if you would like to help me in Miami, you can answer me in private. Ms. O'Toole said we must put a local face on this for the community to respond and learn. Thank you so much for your time. Oma Blessed Grandmother of Chloe Quote Link to comment Share on other sites More sharing options...
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