Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 My prayers are with all of you. May Leanna pull through this crisis very soon and be back at home where she belongs. Kathy, grandma to Audrey, 3 yearssuhad1970@... wrote: To everyone, Leanna got admitted to the hospital today because she is having trouble swallowing and has no appetite and very tired. I hope to God that she pulls through this . I know many of you are praying and I wanted to update.I juts came home and her dad is spending the night there with her. I am scared to death. She has never been this bad. Please keep praying. We are losing way too many children to this disease. I HATE MITO> IT IS SO EVIlL. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Suhad, You and your family are in my prayers. Have they checked her thyroid function? Just a thought. Loriann -mom to , and Lucas --- suhad1970@... wrote: > To everyone, > > Leanna got admitted to the hospital today because > she is having trouble > swallowing and has no appetite and very tired. I > hope to God that she pulls > through this . I know many of you are praying and I > wanted to update.I juts > came home and her dad is spending the night there > with her. I am scared to > death. She has never been this bad. Please keep > praying. We are losing way > too many children to this disease. I HATE MITO> IT > IS SO EVIlL. > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of > Leigh's Synd.) & Leanna > with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@... > > Alt Email: Suhad@... > > AiM Chat: Suhad1970 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Praying for Leanna.... Ann( Eli's Mommy) > To everyone, > > Leanna got admitted to the hospital today because she is having trouble > swallowing and has no appetite and very tired. I hope to God that she pulls > through this . I know many of you are praying and I wanted to update.I juts > came home and her dad is spending the night there with her. I am scared to > death. She has never been this bad. Please keep praying. We are losing way > too many children to this disease. I HATE MITO> IT IS SO EVIlL. > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna > with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@s... > > Alt Email: Suhad@S... > > AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Big prayers being sent your way. Try the new Beta version of MSN Messenger - it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Suhad, we are praying for your daughter and your family, please keep us updated!! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 We are also praying for a speedy recovery for Leanna, also strength for all of your family, as that works wonders in itself. Lois Re: LEANNA update Suhad so sorry to hear about Leanna. You are in our thoughts and prayers. I know it is hard, but you have to believe she'll pull through. She needs your strength. rosyPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 We continue to pray for Leanna. Kim - Mom to and Lindsey LEANNA update To everyone, Leanna got admitted to the hospital today because she is having trouble swallowing and has no appetite and very tired. I hope to God that she pulls through this . I know many of you are praying and I wanted to update.I juts came home and her dad is spending the night there with her. I am scared to death. She has never been this bad. Please keep praying. We are losing way too many children to this disease. I HATE MITO> IT IS SO EVIlL. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Suhad, My heart us aching for you all at this very difficult time. A year ago this past January Audrey was very ill, the worst she had ever been. They were within minutes of intubating her and she started to turn around. She spent a few nights in ICU and in the end the Doctors sent her home with the message to just enjoy her for the next few days as they didn't see how she would make it another week. God answered our prayers and she is still with us. I wish I could give you some wonderful words right now, but I am at a lose. Just hold onto your faith and know that there are many people around the world praying for Leanna and your family. Feel the warmth or the arms around the world that are comforting you and try to get some sleep. God be with you, Kathy, grandma to Audrey, 3 yearssuhad1970@... wrote: To everyone, Thank you all for your well wishes and prayers. I am at home while my husband spends the night with leanna. She is not doing well at all. Very weak very quickly and no appetite. She got a nG tube today to add calories. I am beyond tired physically and mentally and I do not know how I can deal with this. I just listened to her adorable messag on our answering machine where she is giggling and I do not know if I will ever hear her be so funny again. Have any of your kids ever been this bad and actually made a turnaround. She cannot hold her head, hardly talks, losing bladder control, ptosis but has not started the labored breathing yet that got Samya intubated. We are conisidering NOT considering intubation and making her suffer like Samya did. TOUGH DECISIONS GOD help us. I need to go lay in my bed and get ZERO sleep again and see how long until my body gives out. God bless you all and God give us all strength for all we endure. Only you guys can even imagine how tired I am now. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Suhad, I am so terribly sorry at what you are going through. My heart has been breaking for you and the other children who are having such difficulty this week. I pray that Leanna gets better and that God gives you the strength to get through this time... hold her and hug her and all those good things you do, she knows how much you love her. Anne R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 {{{{{{{Suhad}}}}}} Thinking of you all and keeping you all in my prayers. I cannot even imagine what your going through and my heart breaks thinking about it. Take care of you as much as you can. -- BIG hugs, Kass, proud mom to Chance(11-Mito), Madison(8-Mito), and Abby(7-Mito) suhad1970@... wrote: To everyone, Thank you all for your well wishes and prayers. I am at home while my husband spends the night with leanna. She is not doing well at all. Very weak very quickly and no appetite. She got a nG tube today to add calories. I am beyond tired physically and mentally and I do not know how I can deal with this. I just listened to her adorable messag on our answering machine where she is giggling and I do not know if I will ever hear her be so funny again. Have any of your kids ever been this bad and actually made a turnaround. She cannot hold her head, hardly talks, losing bladder control, ptosis but has not started the labored breathing yet that got Samya intubated. We are conisidering NOT considering intubation and making her suffer like Samya did. TOUGH DECISIONS GOD help us. I need to go lay in my bed and get ZERO sleep again and see how long until my body gives out. God bless you all and God give us all strength for all we endure. Only you guys can even imagine how tired I am now. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 Suhad... Oh, I am not sure anything can be said to comfort you in this time, except know that people love you and are supporting you. Parent's shouldn't have to make these kind of decisions for their children. I pray things will turn around and Leanna will find strength to overcome. I pray for peace and rest for all of you! deb...mom to four great kids and wife to one amazing guy!www.LifeofLoveProject.orgwww.debwells.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 We are going through a difficult time with one of our boys right now and really struggling with it. We were sent this quote, which I will pass along to you: “Sometimes God calms the storm, other times he calms the people in the storm.” I pray that whatever happens over the next few days, you will be able to find some peace and rest that will enable everyone to get through it safely. Of course, above all we ask that she will recover quickly and with no regression. Rod From: suhad1970@... Sent: Friday, March 11, 2005 1:15 AM To: Mito Subject: LEANNA update To everyone, Thank you all for your well wishes and prayers. I am at home while my husband spends the night with leanna. She is not doing well at all. Very weak very quickly and no appetite. She got a nG tube today to add calories. I am beyond tired physically and mentally and I do not know how I can deal with this. I just listened to her adorable messag on our answering machine where she is giggling and I do not know if I will ever hear her be so funny again. Have any of your kids ever been this bad and actually made a turnaround. She cannot hold her head, hardly talks, losing bladder control, ptosis but has not started the labored breathing yet that got Samya intubated. We are conisidering NOT considering intubation and making her suffer like Samya did. TOUGH DECISIONS GOD help us. I need to go lay in my bed and get ZERO sleep again and see how long until my body gives out. God bless you all and God give us all strength for all we endure. Only you guys can even imagine how tired I am now. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 I have been praying for your family many times a day. Hopefully you can get a little rest. I wish you all the best. Try the new Beta version of MSN Messenger - it's FREE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 Suhad, If only words could help you through this time, I would write a million. My heart aches for you and your husband. I pray for wisdom for the doctors and for God to work the magic only He can do. Please give Leanna a hug and a kiss from all of us and let her know we love her and we want her to pull through. I pray that you and your husband can find strength and God will provide you will the answers you are looking for. God Bless, Kim - Mom to and Lindsey LEANNA update To everyone, Thank you all for your well wishes and prayers. I am at home while my husband spends the night with leanna. She is not doing well at all. Very weak very quickly and no appetite. She got a nG tube today to add calories. I am beyond tired physically and mentally and I do not know how I can deal with this. I just listened to her adorable messag on our answering machine where she is giggling and I do not know if I will ever hear her be so funny again. Have any of your kids ever been this bad and actually made a turnaround. She cannot hold her head, hardly talks, losing bladder control, ptosis but has not started the labored breathing yet that got Samya intubated. We are conisidering NOT considering intubation and making her suffer like Samya did. TOUGH DECISIONS GOD help us. I need to go lay in my bed and get ZERO sleep again and see how long until my body gives out. God bless you all and God give us all strength for all we endure. Only you guys can even imagine how tired I am now. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 Suhad, Words can not describe how sad I feel for you right now. Know that the group is here for you. Geri-Anne and Wyatt, Complex I - In Mito , <suhad1970@s...> wrote: > To everyone, > > Thank you all for your well wishes and prayers. I am at home while my > husband spends the night with leanna. She is not doing well at all. Very > weak very quickly and no appetite. She got a nG tube today to add calories. > I am beyond tired physically and mentally and I do not know how I can deal > with this. I just listened to her adorable messag on our answering machine > where she is giggling and I do not know if I will ever hear her be so funny > again. Have any of your kids ever been this bad and actually made a > turnaround. She cannot hold her head, hardly talks, losing bladder control, > ptosis but has not started the labored breathing yet that got Samya > intubated. We are conisidering NOT considering intubation and making her > suffer like Samya did. TOUGH DECISIONS GOD help us. I need to go lay in my > bed and get ZERO sleep again and see how long until my body gives out. > > God bless you all and God give us all strength for all we endure. Only you > guys can even imagine how tired I am now. > > > > > > > > > > Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna > with same disease. > > Samya's Memorial Site: www.samyahaddad.com/.org/.net > > Email: Suhad1970@s... > > Alt Email: Suhad@S... > > AiM Chat: Suhad1970 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 We will pray for your daughter, never give up hope. It sounds like you have been very strong for a long time, and you have to stay strong for Leanna. Our kids are amazing, God works in mysterious ways, but I know hes watching over Leanna. We will pray for strength and healing hands for your family. LEANNA update To everyone, Thank you all for your well wishes and prayers. I am at home while my husband spends the night with leanna. She is not doing well at all. Very weak very quickly and no appetite. She got a nG tube today to add calories. I am beyond tired physically and mentally and I do not know how I can deal with this. I just listened to her adorable messag on our answering machine where she is giggling and I do not know if I will ever hear her be so funny again. Have any of your kids ever been this bad and actually made a turnaround. She cannot hold her head, hardly talks, losing bladder control, ptosis but has not started the labored breathing yet that got Samya intubated. We are conisidering NOT considering intubation and making her suffer like Samya did. TOUGH DECISIONS GOD help us. I need to go lay in my bed and get ZERO sleep again and see how long until my body gives out. God bless you all and God give us all strength for all we endure. Only you guys can even imagine how tired I am now. Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.samyahaddad.com/.org/.net Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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