Re: Thank you for prayers/ hailees symptoms

[Guest guest]

Cindy and everyone else,, Thank you so much for your prayers and support...

hailees symptoms over the last two months, have been a tremor (whole body), comes and goes, she will have it for a few hours non stop than it dissapears for a little while, vomitting off and on, complaining of body pains, she would cry that her body hurts..than yesterday her eyes started to get shaky, where they would go back and forth really fast, and started having loss of body motor skills, she couldnt get up if she toppled over, cant walk, barely talks, (shes a jabberr), slurred speach..

Tomorrow we are scheduled for her CT scan, they tried to do everythhing today so we wouldnt have to keep being sedated but no such luck...

She is smiling and happy thru this all though..

[Guest guest]

Dear :

Thank you for the info on symptoms! I hope the CT scan goes well

tomorrow and I hope they can diagnose this. Did they find evidence

of a neuroblastoma in another type of scan?

Ben (my 8 year old) has had some of these symptoms the last two

months, too, whole body jerks, eyes jerking. The doc thinks it is an

extreme case of tics. We are on our last dosage of the second strong

medication to try to see if we can stop them. He had a MRI which

didn't show any evidence of a large brain tumor(although it was so

blurry due to his jerking that they couldn't see small detail) . I

wondered about neuroblastoma based upon some of these symptoms. He

really hasn't had the vomitting or balance issues, but has had some

unusual leg aches.

Enough about Ben, I am praying for Hailee. Please update more when

you can!

Cindy Cruz

> Cindy and everyone else,, Thank you so much for your prayers and

support...

>

> hailees symptoms over the last two months, have been a tremor

(whole body),

> comes and goes, she will have it for a few hours non stop than it

dissapears

> for a little while, vomitting off and on, complaining of body

pains, she would

> cry that her body hurts..than yesterday her eyes started to get

shaky, where

> they would go back and forth really fast, and started having loss

of body

> motor skills, she couldnt get up if she toppled over, cant walk,

barely talks,

> (shes a jabberr), slurred speach..

>

> Tomorrow we are scheduled for her CT scan, they tried to do

everythhing today

> so we wouldnt have to keep being sedated but no such luck...

>

> She is smiling and happy thru this all though..

>

[Guest guest]

We will be praying for Hailee. It's amazing how strong our kids are,

but I will pray for continued strength for your family also.

Lois

Re: Thank you for prayers/ hailees symptoms

Cindy and everyone else,, Thank you so much for your prayers and support...hailees symptoms over the last two months, have been a tremor (whole body), comes and goes, she will have it for a few hours non stop than it dissapears for a little while, vomitting off and on, complaining of body pains, she would cry that her body hurts..than yesterday her eyes started to get shaky, where they would go back and forth really fast, and started having loss of body motor skills, she couldnt get up if she toppled over, cant walk, barely talks, (shes a jabberr), slurred speach..Tomorrow we are scheduled for her CT scan, they tried to do everythhing today so we wouldnt have to keep being sedated but no such luck...She is smiling and happy thru this all though.. Please contact mito-owner with any problems or questions.

[Guest guest]

Hailee is in our prayers as well...I hope everything goes well with the treatments, whatever they may be.

KK

Re: Thank you for prayers/ hailees symptoms

Cindy and everyone else,, Thank you so much for your prayers and support...hailees symptoms over the last two months, have been a tremor (whole body), comes and goes, she will have it for a few hours non stop than it dissapears for a little while, vomitting off and on, complaining of body pains, she would cry that her body hurts..than yesterday her eyes started to get shaky, where they would go back and forth really fast, and started having loss of body motor skills, she couldnt get up if she toppled over, cant walk, barely talks, (shes a jabberr), slurred speach..Tomorrow we are scheduled for her CT scan, they tried to do everythhing today so we wouldnt have to keep being sedated but no such luck...She is smiling and happy thru this all though.. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions.