Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 Jessy well that would depend... Yes there are drs who are experienced in Mitochondrial disorders...Whiteman at Mayo, Cohen at Cleaveland Clinic, Korson at New England Medical Center and a couple in California are the biggest ones I think...however, the UMDF keeps a list of drs that have mito pts.... If your daughter is more metabolically affected, then I would see a Metabolicist (Geneticist second choice there) and if your daughter is more Neurologically affected then I would let a Neurologist take the lead and also see a Geneticist/Metabolicist for follow up too. Where do you live? mom to (07.04.96-05.26.03) with Mitochondrial disease, complex I and IV....Gaige, 5, with High Functioning Autism...Bliss, 3, with very very mild cerebral palsy and True, born 01.18.05 and married to one swell man! www.LifeofLoveProject.orgwww.debwells.com Quote Link to comment Share on other sites More sharing options...
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