Re: Digest Number 3059

[Guest guest]

Re: Cyclic vomiting,

Hi Lois,

My son has a severe form of CVS and when he goes into a vomiting

episode he vomits every 10 minutes for up to 3 days. He also can't walk or talk

he looks like he is in a coma until the episode resolves he does not open his

eyes until the episode is over. On the zofran the liquid we heard taste

horrible the pharmacist told us she could add a flavor and suggested the grape

flavor as she thought that was the strongest and be the best to cover the strong

taste. They also make a ODT in zofran that dissolves under the tongue best of

luck I hope this information helps you.

Hugs,

Donna K

---- Mito wrote:

>

>

> There are 25 messages in this issue.

>

> Topics in this digest:

>

> 1. -cooling vests ?

>

> 2. RE: -cooling vests ?

>

> 3. RE: -cooling vests ?

>

> 4. Re: -cooling vests ?

>

> 5. Re: LOIS-ER NOW SUGGESTED!

>

> 6. Re: Re: LOIS-GERD/cyclic vomiting

>

> 7. Re: Leanna in crisis/prayers needed

>

> 8. RE: Leanna in crisis/prayers needed

> From: deedee2n@...

> 9. Re: Re: LOIS-GERD/cyclic vomiting

>

> 10. Re: LOIS-ER NOW SUGGESTED!

>

> 11. Re: Leanna in crisis/prayers needed

>

> 12. Re: rubbing alcohol smell

>

> 13. Cytochrome P450 function in mitochondrial disease?

>

> 14. Re: to Kiml re; Creatine

>

> 15. RE: Re: rubbing alcohol smell

>

> 16. Re: rubbing alcohol smell

>

> 17. Re: A Question

>

> 18. Newborn screening

>

> 19. Re: LOIS-GERD/cyclic vomiting

>

> 20. stiff legged gait?

>

> 21. Re: LOIS

>

> 22. Re: rubbing alcohol smell

>

> 23. Re: stiff legged gait?

>

> 24. RE: Cytochrome P450 function in mitochondrial disease?

>

> 25. RE: stiff legged gait?

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 1

> Date: Tue, 8 Mar 2005 08:36:50 -0800

>

> Subject: -cooling vests ?

>

> Hey ! I pulled up this website and was wondering if you could tell me

if the " Junior Vest " is anything like what you have for Grace? Does it look

like a decent vest?

>

> Thanks!

> Kim - Mom to and Lindsey

>

>

> The message is ready to be sent with the following file or link attachments:

> Shortcut to: http://69.20.87.87/index.asp?PageAction=VIEWCATS & Category=4

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> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 2

> Date: Tue, 08 Mar 2005 10:13:14 -0500

>

> Subject: RE: -cooling vests ?

>

>

>

> [This message is not in displayable format]

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>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 3

> Date: Tue, 08 Mar 2005 10:14:50 -0500

>

> Subject: RE: -cooling vests ?

>

> http://www.heatreliefdepot.com/catalog/default.php

> <http://heatreliefdepot.com/catalog/product_info.php/cPath/156/products_

> id/294?osCsid=81dfda67c95ea05bb2d84ca78a730880>

>

> I used the above site to get Hailey & Brenna vests, seat cushions,

> Teddybear & neckbandanna's. I called and spoke with them directly and

> found them to be very helpful & would recommend them. The seat cushions

> are great for the stroller or even in the car. They have used them to

> sit on or for behind their backs. The vests come with and extra set of

> freezer packs. The neckbandanna's have velcro.

>

> Kerry

>

> -cooling vests ?

>

>

> Hey ! I pulled up this website and was wondering if you could

> tell me if the " Junior Vest " is anything like what you have for Grace?

> Does it look like a decent vest?

>

> Thanks!

> Kim - Mom to and Lindsey

>

>

> The message is ready to be sent with the following file or link

> attachments:

> Shortcut to: http://69.20.87.87/index.asp?PageAction=VIEWCATS

> <http://69.20.87.87/index.asp?PageAction=VIEWCATS & Category=4>

> & Category=4

>

> Note: To protect against computer viruses, e-mail programs may prevent

> sending or receiving certain types of file attachments. Check your

> e-mail security settings to determine how attachments are handled.

>

> Please contact mito-owner with any problems or

> questions.

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>