Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Ann K Thanks so much for sharing this...I think of Sammy and Anne often...I will check the site. I am so sorry Anne...know I am here if you need to talk at all. I pray Peace and Rest for you! deb...mom to four great kids and wife to one amazing guy!www.LifeofLoveProject.orgwww.debwells.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 It was posted by Lori when she posted to me about Zantac for Leah. It was in a message. The funeral was today. I live two hours away but couldn't make the funeral because of prior committments. Nerenhausen mom to Leah > > > I didn't see this posted anywhere here and I wanted to make sure > that those of you that knew him are aware of his passing. I know > that Anne used to post here alot and follows the boards. She has > posted many wonderful supportive messages. > > Sammy died on March 3, 2005 if anyone would like to show support to > the family visit his website and leave a message in the guestbook > and please say a few prayers for Zach and his family as he is still > fighting everyday a horrible illness that now has taken his brother. > > > Zach and Sams website: > > http://www3.caringbridge.org/wi/zachsam/index.htm > > God Bless you Anne and be with you while you go on without your > precious Sammy. > > Love > Eli's Mommy -(Ann K) > http://www.caringbridge.org/co/elijahkurtz > Elijah 2years old -Leigh's Syndrome > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Thank you. I did not see the buried post and appreciate you bringing it to our attention. I cannot even imagine. . . Beth > > I didn't see this posted anywhere here and I wanted to make sure > that those of you that knew him are aware of his passing. I know > that Anne used to post here alot and follows the boards. She has > posted many wonderful supportive messages. > > Sammy died on March 3, 2005 if anyone would like to show support to > the family visit his website and leave a message in the guestbook > and please say a few prayers for Zach and his family as he is still > fighting everyday a horrible illness that now has taken his brother. > > > Zach and Sams website: > > http://www3.caringbridge.org/wi/zachsam/index.htm > > God Bless you Anne and be with you while you go on without your > precious Sammy. > > Love > Eli's Mommy -(Ann K) > http://www.caringbridge.org/co/elijahkurtz > Elijah 2years old -Leigh's Syndrome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Thank you for letting us know about Sam. I am absolutely thrown by this and am so heartbroken. Sam was a unique child with some very rare Mito issues and shared the Vascular issues Asenath has also. And then to add on top of that the fact that he died on Asenath's birthday, is hard to handle. I hate to hear of children losing to this disease. It is so hard to swallow. Anyone who speaks to Ann, let her know we care deeply for her and her loss. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) About Sam > > > I didn't see this posted anywhere here and I wanted to make sure > that those of you that knew him are aware of his passing. I know > that Anne used to post here alot and follows the boards. She has > posted many wonderful supportive messages. > > Sammy died on March 3, 2005 if anyone would like to show support to > the family visit his website and leave a message in the guestbook > and please say a few prayers for Zach and his family as he is still > fighting everyday a horrible illness that now has taken his brother. > > > Zach and Sams website: > > http://www3.caringbridge.org/wi/zachsam/index.htm > > God Bless you Anne and be with you while you go on without your > precious Sammy. > > Love > Eli's Mommy -(Ann K) > http://www.caringbridge.org/co/elijahkurtz > Elijah 2years old -Leigh's Syndrome > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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